The dark is getting to me this year—persistent, cold, bitter. But, I’ll be damned if I let it stop me. One thing I know about the dark, is it must be faced. Not feared. Not ignored. Not fought. Not run from. And, for goodness sake, not given into.
That’s my weakness—giving in. I’m captivated by the dark. The stars, that milky stroke across the sky, the fleeting shadows, and the mystery draw me in. I could easily fall into the dark and let it consume me. Indeed, for much of the last four years I’ve had to hide in the dark to protect my skin, sanity, and immune system—staying away from sun and people.
Rod and I went to Dinosaur Provincial Park in September.
A month ago, I sat in my doctor’s office and tears trickled down my cheeks, my breath caught in my throat, and sobs rang from my chest. I held my heart like a hug—a way to comfort myself. My onocologist handed me the tissue box. I’d just been told that the treatment I’m on usually extends survival by about 10 months. It’s a hard thing to hear. I’d just turned 39 and the laughter of my best friend’s first child still rang in my ears from the day before. There’s always light in the darkness, those stars that make the shadows flicker.
It’s not easy getting bad news as the nights grow longer and days become colder. There’s fewer activities to distract me and I’m forced to stay still, to nest… and ruminate. Furthermore, my new treatment makes me quite fatigued, which suits the 16 hour-long nights, but not keeping busy. Still, I get up the next day and make a grocery list because, goodness, I’ve dealt with everything else ad nauseam.
But this is what I’m talking about. I can give in too easy. I can plan so much for darkness that may never come (some darkness always does though). But my weakness is also my strength, because I can also plan for miserable things that need to be planned for. Not that I think death is miserable or dark, per se. But, to be honest, I still like life quite a lot and want to get the full experience—the good and bad, the sublime and imperfect, the light and dark—before I become dust and soil. And, so, I am looking at options. I may be going to the States next year for treatment, if I qualify. There’s a clinical trial coming to Calgary that may be a strong option for me.
And so, I dwell in the darkness of the season, for a bit. I go for walks when the low-hanging sun hits my face. I let stars guide me to new horizons and opportunities, being ready for what may come.
It’s colorectal cancer awareness month. I haven’t “celebrated” this month in the past as I’ve been dealing with resentment and anger that held me back from believing anything could be done. But I’ve done a lot of work and feel ready to share my journey in hopes that it may help others.
My most significant barrier in this journey was getting the testing I needed. I want to encourage people, especially young people, to advocate for themselves when they have symptoms. Symptoms of colorectal cancer include unusual bowel habits, blood in stool, abdominal pain, fatigue, and unexplained weight loss (among others: https://cancer.ca/en/cancer-information/cancer-types/colorectal/signs-and-symptoms).
My first symptom was blood in my stool. I brought this concern to my family doctor who told me it was hemorrhoids without any assessment. Still concerned, I went to two walk-in clinics, but they said they were unable to order tests as I’d need follow-up that they couldn’t provide and repeated that it was probably just hemorrhoids anyway given my age and good health. I switched family doctors. My new doctor seemed unconcerned about my symptoms, repeating that I was young and healthy. In 2020, I had an episode of such painful abdominal cramps that I went to emergency. The doctor there told me it was menstrual cramps and menstrual bleeding; as a 34-year-old with ample experience of both, I knew this wasn’t the case, but because of Covid, I had no one with me to deny this, and I was in too much pain at the time to speak up. I followed up with my family doctor and was referred for a colonoscopy; I was put on the non-urgent list.
The epic inflatable colon courtesy A Healthier Michigan/flickr
What is described above, unfortunately, is all too common of a story for young people. By the summer of 2021, I felt sick constantly, had trouble eating, experienced poor bowel habits, and always felt exhausted. I went to the emergency again and was told I had to pick one thing that was bothering me, which at the time was my chest (it turned out the metastasis in my liver was pushing on my lungs and causing pain). The x-ray showed spots on my liver. They didn’t say cancer, but I knew this wasn’t good. My family doctor followed up the next day and changed my colonoscopy order to urgent. And that’s how this whole journey began.
I do not want other people to go through this. If I could make one suggestion that would have helped me, it would be to bring people with you to appointments! Tell your supporter what concerns you and ask for their help pushing back. I’ve been a very independent person for much of my life, but I found it difficult when I was in pain to speak up. Not only that, but it was hard for me to admit that something could be wrong despite knowing that early cancer detection leads to better outcomes.
One thing that constantly tripped me up was being “healthy.” I can’t count the number of times doctors would ask me, “Are you healthy?” What does that even mean? I’ve placed a high value on health since I was a teenager. Being a competitive swimmer, outdoorsy person, and diabetic made me learn how to take care of myself. Sure, I sometimes went too far, but I’ve always prided myself on healthy habits. It was this pride that ultimately made me believe doctors when they assured me that someone healthy like me wouldn’t have something like cancer! Since then, I’ve discovered lots of healthy people get cancer: marathon runners, weight lifters, and regular people with great routines. There are many pathways and variations to colon cancer and any cancer.
I have heard friends say that they don’t see a point in being healthy if someone like me could get cancer. Well, here’s the thing: I value having the healthy habits I had before cancer. It took me a long time (42 months at least) to overcome my resentment, but here I am. For one, my healthy habits brought me benefits as I practiced them (joy, self-discovery, better emotional regulation, great poops, better blood sugar management, etc). For two, it’s been easy for me to continue these habits through treatment, which has been helpful. And for three, I believe some of my recovery and stability can be attributed to these habits.
For me, healthy habits include
Maintaining a strong social network. I love my book clubs, writing groups, friend circles, and one-on-one hangs. This has become vital as I navigate cancer, yet the work I did throughout my 20s and the people who reciprocated have proven invaluable in my support network. As social media and smartphones make loneliness all the more pervasive, it is critical that we put in the effort to maintain in-person connections as much as we can.
Paying attention to stress. I started a serious meditation practice around 2017. It helped me move slower and be more aware of my feelings. At the same time, I started seeing a CBT psychologist who helped me look for stress warning signs and practice emotional regulation. I’m grateful to my mom, who modelled work-life balance. Although I’m a real go-getter, I have always tried to keep work to 8 hours a day. However, my enthusiasm for life and fear of boredom cause some overcommitment issues, which I’m working on.
Exercising! Exercise is one of my favourite things. I love how it makes me feel, positively affects my mood, and helps me control my blood sugar. I love going for morning jogs and discovering the places where I am (I have seen wildlife like armadillos, storks, deer, and so much more)! Morning jogs let me catch beautiful sunsets and capture the most serene moment of the day. Swimming allowed me time for quiet reflection and focus. I’ve been lucky to have wonderful ways to get to work that bring me through forests and along rivers, even if they take a bit longer.
Eating whole foods. I’ve always loved cooking from scratch. I love playing with flavours and how satisfying a home-cooked meal is. I used to indulge in much more cake and candy than I do now. And I feel a lot better cutting back on those things. My tummy is a lot happier, and my energy is even. I’m hopeful my high-probiotic, high-fibre diet pre-cancer—and a bit of luck—helped my colon get back on track after surgery! Butt [sic[, you got to love your microbiomes.
Taking care of my environment. Oddly, I never thought of this as a health measure. I care about the Earth, so I bought organic, local, and non-toxic products. Now that I have cancer, this comes up from time to time, and apparently what’s good for the Earth (low chemicals, low plastics, sustainable manufacturing practices) is also good for us! Go figure. It feels good to be doing something that helps the planet and us, and it’s nice that I don’t have to learn responsible purchasing habits from scratch.
Living meaningfully. One thing that lifted my spirits more than anything at the time I was diagnosed was having felt I lived a good life. I chose meaningful work, made choices based on my values, strove to minimize harm, and helped where I could. I embraced life and kept an open mind to experiences, leading to a sense of fullness. Living meaningfully has made the fear of death unthinkable for me. Ever since my dad died, I have always wanted to go to sleep knowing that if I should die tomorrow, I’d have lived well.
Sleeping has been the toughest thing for me. I’m still working on it, but I know it’s essential. I’ve always known sleep is important and aimed for the 7–8 hours a night, but I struggled in this hyper-lit and connected world. I have started dedicating more to a good sleep routine and love it. I feel like a regular routine and good sleep help me focus, but cancer treatment is also weird and zaps a lot of my energy. Still, I appreciate a good sleep routine.
Having financial stability. This one is tough because there are so many factors that affect my financial well-being, such as my family history and support (plus a pretty good settlement after a car hit me), which I do recognize not everyone has. Still, learning good financial practices early in life, like becoming confident in budgeting and investing, has served me well and has made me less stressed in this cancer journey.
I’m sorry to say that these habits won’t definitely prevent cancer. But, I do think they have helped me survive through cancer. I have resented this, and I have resented that I didn’t get to undergo some miraculous lifestyle change that somehow reversed my cancer; I don’t even know if I believe that is possible without modern medicine.
Nonetheless, the benefits of healthy living are vast, and I’d encourage everyone to try out one or two this year. And advocate for testing!!!
December had been coming to a close with a glow of optimism. In the final weeks of 2024, I had a CT and MRI scan. I expected good results, given that September’s tests showed an excellent response to the new drugs I was on. My continued skin problems should have been a sign that the drugs were working on my tumours as much as they were irritating my skin. As you might detect in my wording here, the scans were not great, but not terrible. Heck, maybe they’re better than I’m giving them credit for. The lesions in my liver remain the same size as they were in September, which means I probably won’t qualify for surgery and that I may need to move onto another treatment path (or not) yet again. This isn’t uncommon, but it still sucks. In particular, the ongoing uncertainty sucks.
With this news, the new year didn’t have the “turning a new page” glow that I often experience around this time.
After ringing in two new years while on chemo and having been in treatment for so long, the fascination with it all–which gave some excitement to the otherwise horrendous experience–has largely faded into the dull hum of life. (This is part of the reason I don’t post as much anymore). I’ve gotten so much bloodwork and so many scans that they all feel mundane. One pathetic highlight of the last year was finding free parking near the hospital, which also provides a rather scenic and peaceful walk before appointments.
It feels like I’ll be on this journey forever, and I don’t know what that means or looks like.
Although uncertainty about the future is a fact of all our lives, going into 2024 feels like a particularly unwelcome point of uncertainty for me. I still look forward to the fruition of some projects, but I worry about my ability to be fully present. I expect myself to be the person I was before diagnosis, which just isn’t the case anymore. I have chosen projects that give me the flexibility and accommodations I need. Still, I remember when prioritizing flexible work hours and modes of work was less important. Navigating my abilities and limitations makes everything more complicated.
I try to find grounding, joy, and hope, but sometimes the ominous grey clouds do not clear as readily.
I am frustrated by the slow pace at which I operate. For one, treatments put me out for a few days, followed by a few more slow days as I recover my energy. I have so many healthcare appointments to manage. My mental ability is hit or miss; I find myself forgetting a lot more and finding it hard to focus for extended periods of time. I lose words. I become overwhelmed with how best to take care of myself. I worry about people noticing my difficulty forming and expressing coherent thoughts.
I’m practicing several ways to cope, and I am grateful for a younger version of myself who developed many healthy strategies.
Of all the healthy routines I’ve practiced, I’ve always struggled with enjoying the present moment. A moment can be a fraction of a second or extend over millennia. The past and future press into even the most minuscule moment, shaping it. I can’t divorce the history of my body and surroundings from the millisecond I reside in, the present. Likewise, although in a more obscured way, I am aware of the buzzing of the future that my body enters and builds from this moment. For these reasons, I struggle to find presence.
Is the present a tiny speck in the universe of time? By the time I register what my senses perceive, the present is past, and I am catapulted against the portal to the future.
I am working on being present. That’s the most sure thing I can lay down for 2024. I don’t know where my health journey will take me, but the projects I’m working on are full of possibilities, and I look forward to them taking their shape. For me, I’ll be sitting in the present each day and trying to sense its fullness. Maybe this year, I’ll find it.
I’ve returned from a short birthday “vacation,” full of waterfalls, cedars, and lakes. Although side effects from my current chemo regime afflicted me, Rod and I were able to enjoy the peaceful days together (except maybe the part where I took us up a daunting service road in our tiny civic to see a cedar grove. I think the adrenaline of the drive added to our eventual enjoyment. Also, not the first time I’ve taken civics on such inadvisable drives).
I’ve been reading John O’Donohue’s Anam Cara (a Celtic word, meaning soul friend). Early on, he introduces the idea that the soul holds the body within it, rather than the soul being an entity within the body [Amazingly, when I asked Rod where his soul was, he said everywhere! For me, this was a bit of a revelation]. I loved the practice he offers of breathing in the soul, feeling the relationships I share with all that is around me, and how nourishing–maybe even healing–this is.
Beyond all else, I am immensely grateful for my friends and community. The walks and chats I’ve had with you have been so invigorating, and kept my optimism alive. Reading books, taking courses and doing workshops with you has fed my soul. The peaceful and reflective times where we’ve merely just soaked in each other’s presence has been nourishing. Your gifts of company, conversation, care giving, food, money, art and books [if you’ve lent me books, I will get them back to you, promise] have all been so appreciated. I keep many of these gifts in my living room with me so I am regularly reminded of you. Thank you thank you thank you!
In this exercise of gratitude, I am also extending these words to myself and to my more-than-human companions (the saskatoon bushes, the strawberry plants, the bluff and its grasses, the rivers, the squirrels…). I realize how fortunate I have been to find great friends in myself and in the landscapes, for with these friends I am never alone.
I am not hosting a gathering this year for my birthday, I have tried to schedule various one-on-one hangouts instead. Last year’s gathering–in the days before my liver and colon surgery–was hosted in appreciation of all that you’ve done for me. Although there’s no formal gathering this year, I just want to send everyone a big hug of gratitude, some nice pictures, and these closing words by John O’Donohue:
“A Friendship Blessing
May you be blessed with good friends. May you learn to be a good friend to yourself. May you be able to journey to that place in your soul where there is great love, warmth, feeling, and forgiveness.
May this change you. May it transfigure that which is negative, distant, or cold in you. May you be brought in to the real passion, kinship, and affinity of belonging.
May you treasure your friends. May you be good to them and may you be there for them; may they bring you all the blessings, challenges, truth, and light that you need for your journey.
May you never be isolated. May you always be in the gentle nest of belonging with your anam ċara.”
I want to share a bit of cancer-related grief I’ve been feeling recently. It might not seem huge, but grief doesn’t revolve around the ominous losses alone.
I’ve been a swimmer since before I have conscious memory. My grandparents and parents would take me to the pool at Village Square every Sunday until I started swimming competitively with the Dinos around age 12. Swimming was an escape for me during a couple particularly traumatic events in my childhood—a house fire and the sudden loss of my father. It was the only place I didn’t talk much about my life, allowing me to simply exist. Being in the water felt stabilizing in those tumultuous times, and I insisted on attending every practice I could.
My dad and I in the pool. I’ve been swimming since I was a baby!
After I retired from competition, I always bought gym memberships with access to a pool. Covid and cancer have changed that. Obviously, pools were closed with so much else when Covid struck in 2020. But, with my cancer diagnosis in the summer of 2021, I have only been able to take a few measured risks even though pools have reopened. Namely, a dip in the ocean and a visit to the Radium Hot Springs, both with ready access to showers and small, off-season crowds. The thing is, I have low neutrophils (a white blood cell key to fighting infections and healing tissue), and I can’t justify putting myself at increased risk from pools and water.
Low neutrophils have probably been my most impactful side effect. Yes, I detest all the hair on my bathroom floor, but thinning hair hasn’t bothered me too much since I prefer shorter hairstyles. Neuropathy (numbness in hands and feet) is mild in my case. I dislike the fatigue and chemo-brain, but it generally lasts only a few days. But low neutrophils (aka neutropenia) have delayed my treatments numerous times. Neutropenia makes me cautious in crowds and poorly ventilated areas. I take extra precautions when doing chores. My husband and I still wear masks almost everywhere. But even these adjustments don’t feel as significant as losing my access to swimming. I’ve felt less choice in letting go of swimming.
In the spirit of change and adaptation, I have found kayaking and canoeing a welcome return to the water, albeit no replacement for swimming. I still miss being in the water, gliding smoothly with a concentration on my stroke alone, enjoying my solitude. I can’t wait for kayak rentals to reopen for the season—only a week away! (Maybe I’ll buy a foldeable kayak this year.) Plus, I’m diving headfirst into a supportive three-day canoe expidition for young adults with cancer at Poisson-Blanc Reservoir in Québec next week. Nonetheless, the extended absence from water since last summer has contributed to my grief around swimming these past few months.
My BFF and I canoeing on the Bow River in Banff last summer.
Just a bit of mourning for the swimmer I am/was. Loss is loss in all its forms. I welcome change as I attend to the grief.
I don’t want to talk about cancer all the time, yet it pervades so much of what I share here. I expect the new year to bring a shift into more expansive writing. Here’s why:
At this time last year, I was settling into the cycles of chemo. The grief of diagnosis gave way to an urge to reconnect with myself and my community. Although treatment and my body’s healing still demanded much of my time throughout the year, I gradually sunk into connecting with my passions and giving what I had to offer. Over time, I spent more energy being me than worrying about cancer.
“No Self stands alone. Behind it stretches an immense chain of physical and—as a special class within the whole—mental events, to which it belongs as a reacting member and which it carries on.”
Erwin Schrödinger, My View of the World
I have found throughout the last year that cancer has undeniably shaped me and yet not become the sole definition of who I am, as I once feared it would. I don’t push away or deny cancer as part of my identity. I like to think I’ve been learning how to let cancer identity take the space it needs, no more and no less. In doing so, I’ve also found the parts of me that shine—an outdoor enthusiast, an active person, an art lover, an educator, and a designer. Oddly, as I’ve seen these parts, I’ve been drawn to the simple question of “who am I,” exactly? Like the Earth shifting from season to season, the “I” is so constantly in motion with the world around it that the question is not so simple.
As I tried to answer this question and connect with the threads woven throughout my life, I observed how the cancer thread integrates with them. I wish these threads wove into a tight braid because that would be an easy and narratively clean answer to that “who am I” question. In reality, these threads loosen into a fabric lovingly woven with odds, ends, and beginnings—an “I” entwined with a messy whole. First, I find I cannot be defined by cancer alone, nor by any single part. So, while cancer happened to me and the self which sits here today has undoubtedly been shaped by the experience, I am still me. Second, there is no single identity in cancer. For each person, cancer’s impact takes a different shape. I notice that while I have the same experiences as others in the community, there is much I don’t relate to also. I am still that piece of fabric so different than the others and still sharing threads. Instead of denying this new part of my identity, I allowed it in, which has led to healing and for myself to come forth. In this healing, I have affirmed that I love being outdoors, moving, preparing food to share, learning, and helping others to learn by designing experiences. These activities have happily appeared throughout my life and have made me feel settled in who I am.
“There is no single entity whose identity is changeless. All things are constantly changing. Nothing endures forever or contains a changeless element called a ‘self.'”
Thich Nhat Hanh, Thundering Silence: Sutra on Knowing the Better Way to Catch a Snake
As I’ve dove more into systems practice, the most astounding realization of the year has surfaced. Since I was a teenager, a piece of advice has clung to me: If you want to change the world, you must first change yourself. Before 2022, I interpreted this to mean that one needed to be perfect before entering into service work for others. If you know me, you know I didn’t take this entirely literally, but it still nagged at me and led me toward constant self-improvement. It’s only been over the last few seasons that I’ve understood how simply changing oneself changes the larger whole one is part of. As the fabric of the self changes, it pulls on the threads of the entire universe. Likewise, as the cancer experience integrates, it shifts the other parts of me and all to which I am connected.
So, I see how I have been shaped by every experience that has brought my consciousness here, and no one else shares that. This experience—reaching back to eternity—makes a self so incredibly unique and at once impossible without the whole. As I shift like the seasons, I change my future and all I am connected to. It sounds grandiose, but with the perspective of my size in the immensity of time and space, it also seems remarkably insignificant.
All this reflection and what I want to say is I’ll write more over the coming year as I continue to explore. I’m unsure if I’ll share it on this blog, but if I do and you follow me, you will likely find more stories and thoughts without cancer as a feature.
For now, know that I am recovering well from surgery (a colon and liver resection). My bowels have pulled through for me and are 95% up to pre-surgery function—amazing. I have a big scar running through my abdomen, and I am excited for summer weather to show it off. I’ll hopefully have another surgery in the next few months for the rest of my liver. If all goes well, I’ll be able to ease back into doing those things I love more full-time and reliably.
I don’t feel qualified to write this post. I’ve rewritten and revised it over half-a-dozen times. Despite my hesitation, I’m compelled to share. Why? Because community is an essential part of well-being and deepening community is one of the most immediate actions one can take to improve survival in this world. Bold statement, I know.
One of the greatest helps since being diagnosed with cancer has been community. Community has been a significant part of my life for a long time, even if I didn’t always acknowledge it.
In my teens and twenties, I placed a high value on independence. I got a car shortly after turning sixteen, and loved being able to get myself around. At some point in those years of discovering my independence, I found myself less interested in the clothes and entertainment my “popular” peers were interested in. I would go to the mall, movies and coffee-shops on my own if I wanted. I even read up on living off the land, how to grow soy and hemp, and how to forage. I never needed to ask for help, and thought that doing so was a weakness. I saw it as an asset that I didn’t need to rely on anyone else.
Truth be told, I relied heavily on others. Not just material reliance, but reliance on the acceptance from others too. I didn’t realize it.
But with time has come a different understanding of the world. While I am grateful for those years spent getting to know myself through the search for independence, my values have shifted much more towards community and interdependence. By this, I mean the various clusters of beings who are connected by a common root and grow together. These beings, some of whom I know deeply and others whom I barely know, have helped navigate these difficult and magnificent times of my life.
There are communities of shared interests, like that which I found in community radio and music. Without fully realizing at the time, working in radio was about community more than anything else. Here, a diverse mix of people come together to share something they love. I wouldn’t (still don’t) consider myself a community builder, but moving into this community space at a young age showed me so much about listening, sharing, gathering, and showing up.
There are communities of shared geography, like the beautiful neighbourhoods I’ve chosen to live in. These vibrant communities are home to friends and familiar faces. Like I said, I’m no community builder, but I do benefit from the work others have done to create exciting community spaces where I can participate in building community. I love participating. I love going to my neighbourhood coffee shop and making small talk. I’ve followed the stories of babies being born to starting school, and so much more. I frequently run into neighbours and friends on my walks and it is one of the most magical feelings. Admittedly, sometimes I’m too caught up in my own thoughts to say hi, sometimes it’s just a smile and wave, and sometimes it turns into a half-hour conversation. My body bubbles with joy after even the smallest encounters. I’m amazed at the generosity of people I hardly know extending their help to me this last year.
There are communities of shared struggle, like the cancer community. A close community that allows the sharing of personal stories, struggles, and successes.
As I’ve been appreciating community more and more over previous years, I’ve come to make some observations. I’ve noticed how communities shift, change, and adapt to be what’s needed in the moment. People come, stay, go, and return at different frequencies. Communities form and dissolve, ebb and flow, like tides. I’ve noticed the way everyone contributes in different ways to holding and weaving the space. I’ve noticed the benefits of showing up, and creating a welcoming environment for others to do so too. I’ve noticed that it helps to throw out the scorecard: to give what I can when I can without needing the deed returned, and to accept help graciously. Most importantly, I’ve noticed the brilliance with which communities emerge over time spent caring and sharing together. It doesn’t always have to be heavy, and nor should it be. But it does take time.
I’m heading in for surgery very soon. In some ways, I feel like I’m stepping away from my communities as I recover. I’ve put volunteering on hold and won’t be stopping into my neighbourhood coffee shop. But, in other ways, I am deepening into my community by allowing friends and neighbours to support me when I need help. It’s a very strange feeling for someone who’s valued independence for so long, but I’m doing my best to get more comfortable.
Puberty hit me differently than most. I spent the prime summers of my teenage years in the woods. The days were filled with forest games, forging trails, and mud baths. The nights were spent around campfires or sprawled on smooth rocks next to the gentle woosh of the river. I fell in love with nature during these summers. It wasn’t the Taylors or Alexes that I wanted; I longed to connect with the Engelmann spruces and Douglas firs.
Ironically, my love of nature did not drive me toward a career in ecology. Quite the opposite; In the months beyond summer, I would create computer games, design websites, and fiddle with breadboards in my spare time. And that was the passion I followed as I matured.
Nonetheless, I could not sever my bond with Earth. I didn’t have words for it at the time, but I understand this love as biophilia now. The term put forth by Edward O. Wilson is defined as the human’s affinity for other life and the natural world.
When I received my diagnosis, my first instinct was to bathe in wild lakes and forests. I felt the powerful force of life surge through me, the force written into the DNA of every organism that lived to bring me here today. Starting with the single-cell lifeforms that divided billions and billions of years ago to these beautifully complex ecosystems that continue to find creative ways to sustain and persevere another tomorrow. Throughout my treatment, I’ve prioritized time with these incredible systems. I’ve rekindled my love with the natural world into a bright and steady glow.
Alas, with love comes pain. I once heard it said that to give oneself to love is to accept the eventual pain when the day comes for one to leave and one to be left behind—what some take as a worthy price for the most euphoric of human emotions. And so, extraordinary measures are taken to extend and protect life, the seemingly most innate instinct in our being.
In the month I got my diagnosis, the Intergovernmental Panel on Climate Change (IPCC) began issuing its sixth assessment on the science around climate change, its impact on our world, and what we can do about it. Here I was in August 2021: dealing with my own personal health crisis as news poured in about the escalating health crisis of this planet I deeply love.
Since then, I’ve undergone the medical treatments to shrink and eradicate my tumours (I’m still going). Like many interventions, the medicines come with a price: loss of sensation in fingers and toes, fatigue, and lowered immunity. So too, may we need to accept some losses in mitigating the most severe consequences of climate change, or else there may be much more to lose. But technical solutions are not the sole course of action available, so I’ve learned.
There are so much more than technical interventions in healing. I’ve seen presence, engagement, community, meaning-making, and hope work as some of those interventions. They’ve helped me through this time and could serve in confronting even global crises.
“So let’s resolve ourselves to live meaningfully, honestly acknowledging the truth that life is fragile, time is fleeting, and death is certain—and rather than ignore, avoid, or deny these realities, may we engage this time with greater clarity for our values, a deeper sense of gratitude and appreciation for what we do have, in richer authenticity to ourselves and others, so that we might invest in those relationships we deeply cherish and seek to make the world a better place.”
Daryl R. Van Tongeren
Presence and Engagement
“We must reinvent a future free of blinders so that we can choose from real options.”
David Suzuki
There is no use turning away from reality and pushing away discomfort. It seems fine at first, but it is much more painful in the long term. It’s said avoidance “dilutes our lives by robbing us of the urgency of a finite existence.” (Daryl R. Von Tongeren, Ph.D). Furthermore, Buddhist teacher Frank Ostaseski teaches that “Suffering is exacerbated by avoidance. … Our attempts at self-protection cause us to live in a small, dark, cramped corner of our lives.”
Presence is the practice of being in the moment and appreciating the little things. This practice fills life with meaning, purpose, and wholeness. That meaning is so vital in the difficult times. As psychologists JoshuaHicks and FrankMartela have proposed, “We should slow down, let life surprise us and embrace the significance in the everyday.”
From my own experience of practicing mindfulness, I can attest to and offer a different advantage. As I look back over my life, it is filled with these savoured moments and feelings: warm winds on my face during morning rides, rich risotto in a dim and lively restaurant, raucous laughter around a board game table. These gentle memories remind me of the meaning of my life while also giving me comfort that I’ve lived life well.
Engagement starts with presence. It is standing with our problems and reactions. It’s what allows us to choose meaningfulness day by day. Researchers have seen that this focus can allow negative emotions to coexist with action, instead of letting the emotions paralyze us. To do this, psychologist Susan David offers a reminder that “Emotions are data, they are not directives.” And feelings can be explored by investigating the function they might serve, allowing the emotion to be worked with and through. So too, looking deeper into problems we face, even globally, can give more hope and meaning to our lives.
While presence and engagement are excellent first steps, there’s deeper work needed for our planetary healing.
Community
“There’s never a clear point at which a being begins or ends, and that’s why we are all lichens: a being made up of multiple separate symbiotic organisms.”
Donna Haraway
There is a robust community among cancer patients if one should choose to pursue it. I’ve found great solace and connection with these friends. I’ve also been blessed to be in caring communities in my life beyond cancer. The power of community is incredible when others are there to lift and support the glow of each other. It breaks the walls of loneliness, makes connections, and moves us forward together. There’s hope, support, and meaning in the community… if done well.
Paul Born, founder of the Tamarack Institute, offers that we cannot settle for shallow communities or fear-based communities. These are rooted in turning away or against others. We must strive for deep community. Community, where stories unite us, time together is enjoyed, care is taken, and a better world emerges from our work. It is not passive work; it requires diligence and care, but the rewards are vast: connection, joy, and emergent good.
A “raft” of ants can cross a body of water that would be an insurmountable obstacle for one individual. Credit: Tim J. Patterson via Wikimedia CC BY-SA-3.0
Sarah Jaquette Ray, whose interdisciplinary pursuits have made her an expert on coping with climate anxiety, speaks to the importance of community in movements. In a recent LATimes article, she recommends, “We need to start where we are, use the talents we already have, and plug into groups and communities that are already doing the work. Building community around action should be our measure of success, and it can happen right now.”
Building a community cannot wait until the crisis is at the doorstep. Anyone can start today by working with organizations moving action forward and even by just reaching out to our neighbours. It can begin as simply as sharing ourselves, sharing a story.
Meaning-making
“The more one forgets himself—by giving himself to a cause to serve or another person to love—the more human he is and the more he actualizes himself.”
Viktor Frankl
Meaning-making weaves tightly with presence and engagement. Meaning builds as we appreciate the small things and know how our actions serve greater problems. In challenges as enormous as climate change, it is often more meaningful to focus on what choices and leverage points we do have control of.
Crisis and grief, such as comes with the threat of cancer or planetary extinction, can lead people to find more meaning in life. Grief leads to meaningful shifts in behaviour, such as spending more time with family, being more charitable, volunteering, or deepening spiritual practices. Furthermore, this meaning can surface through community or counselling work with methods such as storytelling (storytelling to cope with grief around climate crisis is abundant).
In his highly popular book, Man’s Search for Meaning, Austrian psychiatrist and Holocaust survivor Viktor Frankl reminds us of the importance of engagement in finding meaning: “What man actually needs is not a tensionless state but rather the striving and struggling for a worthwhile goal, a freely chosen task. What he needs is not the discharge of tension at any cost but the call of a potential meaning waiting to be fulfilled by him.” Luckily, Frankl reassures us that simply our actions and responsibleness towards our everyday choices give life that meaning.
Perhaps that worthwhile goal is a liveable planet. Those actions and choices can be as simple as choosing sustainable transport, buying local and buying less, talking to loved ones, and pushing decision makers toward sustainable choices, away from fossil fuels. Add to that the power of community action; Hope for a better world is palpable.
Practicing Hope
“Hope is a verb with its sleeves rolled up.”
David Orr
Ameme circulates from time to time, saying “When people think about travelling to the past, they worry about accidentally changing the present, but no one in the present really thinks they can radically change the future.” The intervention to this, I believe, is hope.
“Hope is a Discipline” – Mariame Kaba. Credit: @em_swami
For some, hope can feel defeating. But the future exists in the practice of hope. We can begin—today—to live stories of hope; Plantingmetaphoricalseeds for the future we want to see written. But to plant those seeds, we need the hope that they will grow, or else what’s the point?
Whether in the world of cancer or climate emergency, we can practice hope by engaging, choosing our actions with purpose, and becoming active in communities. We can have personal daily practices of mindfulness, presence, storytelling, and joyful connection. We can allow ourselves to fall in love, even though it may be painful. We can fall in love with every precious moment we get to spend among the trees.
Collected Resources
Creating deep community and why that matters: Born, Paul. Deepening community: Finding joy together in chaotic times. Berrett-Koehler Publishers, 2014.
How does meaning emerge from grief and crisis: Brody, Jane E., “Making Meaning Out of Grief.” New York Times, 2019. Lee, Virginia, et al. “Meaning-making and psychological adjustment to cancer: development of an intervention and pilot results.” Oncology nursing forum. Vol. 33. No. 2. Oncology Nursing Society, 2006.
A psychosocial healing strategy offered to cancer patients: Cunningham, Alastair J. Healing Journey. Key Porter Books, 1994.
The importance of meaning in adverse situations (and life in general): Frankl, Viktor E. Man’s search for meaning. Simon and Schuster, 1985.
For more on biophilia, look at the work of Edward O. Wilson: Kellert, Stephen R., and Edward O. Wilson, eds. The Biophilia Hypothesis. Island press, 1993.
How appreciating the little things can add depth and meaning to life: Hicks, Joshua, and Martela, Frank. “A New Dimension to a Meaningful Life.” Scientific American, 2022.
Speaking about different points at which we affect a system and make change: Meadows, Donella H. “Leverage points: Places to intervene in a system.” (1999): 980989.
For lessons about turning toward suffering, welcoming everything, and showing up whole (as well as more on living fully): Ostaseski, Frank. Five Invitations: Discovering What Death Can Teach Us About Living Fully. Pan Macmillan, 2017.
To read more about how problem- and meaning-focused teaching helps youth (and us) deal with climate change: Ratinen, Ilkka. “Students’ Knowledge of Climate Change, Mitigation and Adaptation in the Context of Constructive Hope.” Education Sciences 11.3 (2021): 103.
About dealing with climate anxiety through communities of action: Ray, Sarah Jacquette. “Op-Ed: Is Climate Anxiety Bad For the Planet.” Los Angeles Times, 2021. Ray, Sarah Jaquette. “A Field Guide to Climate Anxiety.” A Field Guide to Climate Anxiety. University of California Press, 2020.
Different ways to look at and practice hope: Tippet, Krista (host). “Future of Hope.” On Being, 2021.
There hasn’t been much change to my routine in the last few weeks. Not much news either, as I find myself in a sort of holding pattern. I am finding it difficult to write about myself amidst all the world’s heaviness. To find focus, I put together a playlist. Let’s start this entry there:
As I said, it’s difficult to focus solely on healing my own body when it feels the larger body of the Earth is also undergoing existential threats. It’s never seemed this heavy before. Is it the fatigue from two years of navigating a pandemic? The sight of love being co-opted and abused—a movement of toxic love-bombing? Is it the magnitude of information streaming from the internet? Countless streams begging for attention? Is it the sheer power of human technology? The exponential growth lines shooting away from our organic presence? The ability of these technologies to wipe out cities? To poison the Earth even more? Perhaps all these factors mark the equation for my current melancholy.
I can make out the reflections between my personal healing work and my response to global issues that threaten life on a much more global scale. So, I strive to choose my actions intentionally with each day I can get up. I balance my tasks, finding both challenges and relaxation. I welcome all my emotions, knowing they are arriving for a reason and that they shall ebb and flow as terrible as it is in the moment. I remember to breathe.
Still, I feel discombobulated. I don’t always get it right. I lose my temper. I scream. I yell cruel words. I make mistakes. I always hope I find my way back to my centre. I’m not seeking any unattainable perfection, no perfection at all. I’m just hoping that my actions result in a net positive, one day at a time.
I’m three-quarters through chemotherapy… hopefully. Nine cycles down, three to go. Then an MRI will dictate if I can go for liver surgery or if I need to pursue another course of treatment. My cancer responds to the chemo very well, so the surgery seems likely, and I am thankful. This is the persistent crush of uncertainty. It’s not something particularly new for me to manage, but it is still tricky.
Each round of chemotherapy seems to bring different issues. I don’t know why. Currently, tiny islands are forming on my hands as gravel-sized pieces of skin peel away. It’s beautiful in a strange way (and, thankfully, not uncomfortable), but also most definitely gross. Fatigue fluctuates. Nausea comes and goes. A dry mouth seems likely. A random bloody nose. Intense tingling reactions to the cold seem constant. At least half of my days see me feeling in relatively good shape, though, and I can freely sing and dance and pursue projects. Yay!
I’ve been keenly navigating these ups and downs. The invisible virus plaguing us for two years adds to the uncertainty. Even the weather—perhaps giving me the chance to spend time outdoors—is uncertain. I’m strengthening my skills to accept what I can’t control, adapt for what I can control, and fertilize the stories I want for the future. It’s been like this for years and requires an adaptive and aware way of seeing.
Adaptation and awareness are skills like any other; they require building and work. I’ve known intimately how fragile life is and how quickly things can change. This awareness I’ve carried with me for some twenty years has given me a specific approach to time management; An approach especially helpful as I’ve been navigating this journey. It’s an appreciation of the moment and gratitude for what I have. A short-term outlook to what’s within my reach—a seize the day kind of way filled with joyful hope and dreaming and doing. And a long view of how intricately interwoven our lives are with this planet and all people. A vast expanse of possibility that my precious life feeds and manipulates even at this tiny, human-sized scale.
I have had to adapt so much these last few months. I sense that our society will have to become accustomed to adjusting in the years ahead. If I could offer advice from my experiences, I’d say it starts small (“small is all,” as adrienne maree brown would say). It begins with gratitude for even the tiniest things: laughter, kind words, a ride to the hospital. Enjoying the small actions I can do: volunteering, helping a friend. A both-eyes-open awareness and consciousness help offer a perspective of what is beyond my circle of control and what is in it. It makes me aware of the vast unknown that is constantly expanding, and approach it with curiosity. It helps make informed decisions, even difficult ones. I allow myself to grieve my losses even if the loss is temporary. I adapt: my workouts move into my living room, volunteering moves online, I make movie nights in the den a festive event, I video-call my husband nightly, and we share a secret virtual hug ritual. I don’t put an end to hope. I keep moving and nurturing the stories I want to see unfold and the communities making them happen. I bathe in the abundance of life around me. For if one cannot find the joy of life in the most difficult moments, what kind of joy is to be found when things get better?
I’d like to acknowledge here the work of adrienne maree brown, who’s informed my thinking about intentional adaptation, resilience, and so much more. Her book Emergent Strategy outlines much of this in the context of strategic social change, and is a delight to read with a dedicated group of friends.
Kat Dornian 