Grieving

I want to share a bit of cancer-related grief I’ve been feeling recently. It might not seem huge, but grief doesn’t revolve around the ominous losses alone. 

I’ve been a swimmer since before I have conscious memory. My grandparents and parents would take me to the pool at Village Square every Sunday until I started swimming competitively with the Dinos around age 12. Swimming was an escape for me during a couple particularly traumatic events in my childhood—a house fire and the sudden loss of my father. It was the only place I didn’t talk much about my life, allowing me to simply exist. Being in the water felt stabilizing in those tumultuous times, and I insisted on attending every practice I could.

A white-skinned, brunette man with red swim trunks and trucker's tan holds up a tiny human in a red bathing suit. They're in shallow water of a pool. Other swimmers can be seen in the background.
My dad and I in the pool. I’ve been swimming since I was a baby!

After I retired from competition, I always bought gym memberships with access to a pool. Covid and cancer have changed that. Obviously, pools were closed with so much else when Covid struck in 2020. But, with my cancer diagnosis in the summer of 2021, I have only been able to take a few measured risks even though pools have reopened. Namely, a dip in the ocean and a visit to the Radium Hot Springs, both with ready access to showers and small, off-season crowds. The thing is, I have low neutrophils (a white blood cell key to fighting infections and healing tissue), and I can’t justify putting myself at increased risk from pools and water.

Low neutrophils have probably been my most impactful side effect. Yes, I detest all the hair on my bathroom floor, but thinning hair hasn’t bothered me too much since I prefer shorter hairstyles. Neuropathy (numbness in hands and feet) is mild in my case. I dislike the fatigue and chemo-brain, but it generally lasts only a few days. But low neutrophils (aka neutropenia) have delayed my treatments numerous times. Neutropenia makes me cautious in crowds and poorly ventilated areas. I take extra precautions when doing chores. My husband and I still wear masks almost everywhere. But even these adjustments don’t feel as significant as losing my access to swimming. I’ve felt less choice in letting go of swimming.

In the spirit of change and adaptation, I have found kayaking and canoeing a welcome return to the water, albeit no replacement for swimming. I still miss being in the water, gliding smoothly with a concentration on my stroke alone, enjoying my solitude. I can’t wait for kayak rentals to reopen for the season—only a week away! (Maybe I’ll buy a foldeable kayak this year.) Plus, I’m diving headfirst into a supportive three-day canoe expidition for young adults with cancer at Poisson-Blanc Reservoir in Québec next week. Nonetheless, the extended absence from water since last summer has contributed to my grief around swimming these past few months.

A short-haired (almost bald), peach-skinned person in sunglasses smirks into the camera while a blue-life jacketed man with a black cap paddles the canoe. They float above turquoise water with a rocky mountain and spruce forest in the background.
My BFF and I canoeing on the Bow River in Banff last summer.

Just a bit of mourning for the swimmer I am/was. Loss is loss in all its forms. I welcome change as I attend to the grief.

Rays

The grief that’s been holding me for five months begins to crack. I see more light pushing through where the substance gives way. Grieving takes time. A shrouding. A breaking. A healing. New growth finds purchase within me, reaching into the illuminated places. Learning how to laugh and dance and sing and read again, with joy now. Growing into these lightened spaces where cancer doesn’t hang like a black cloud.

I still think about cancer a lot. There’s always an appointment on the horizon and side effects from treatment reminding me of my condition. It’s a long, persistent presence. There’s the uncertainty of what the coming months will bring. I wonder if it will always be this way—if the grieving will someday fade to an hour a day or a week. I wonder how joy will show up tomorrow or in a month. Settling into uncertainty is challenging but something many of us are learning. Treasuring the present. Dreaming a tomorrow. Taking small steps.

It’s been said many times, but the holidays are challenging for people moving through grief. There are many ways it manifests. For me, the absence of the usual joy that giving brings me and the burden it places on my scattered chemo-brain has been a struggle. Missing holiday gatherings that are too risky for my immune system sucks (not that these are happening with Covid, to be honest). I desperately want to spend time in the warm lakes of companionship. All of this is on top of navigating ever-colder weather that I’m painfully sensitive to because of chemo.

While laughter touches more of my days, I broke down last week. Thursday evening was set aside for card writing and present wrapping. My heart was heavy, and the usual joy these activities bring was nowhere to be found. I couldn’t concentrate, and even the simple task of signing my name felt overwhelming. I hadn’t planned carefully, and I sensed cards were in short supply. It was too much. I found myself shaking and crying. Thank goodness for my excellent partner. Even though it was late, he and I decided to go to the mall before it closed and see Christmas lights. The first display we saw was the twinkling moose standing at least twelve feet high. We marvelled and enjoyed it. After leaving the mall, we drove through the community, catching glimpses of decorated houses and inflatable figurines propped up on lawns and balconies. It was an act so small, but it broke me out of the doldrums this time. I’ve since been to two more malls for holiday decor admiration. It’s silly, but it’s helping. I’m surprised at what aids me to move forward. I hold a compassionate space for myself to explore these salves.

Today, I’m doing good. Despite the lengthening nights of winter, the light is coming through the cracks. I am connecting with friends, dancing, and singing most days. I’m finding more balance. Not every day is this way, but I’ll take it when it comes and enjoy the rays as they come through.

Lighting up the room with a twinkling tree!