The dark is getting to me this year—persistent, cold, bitter. But, I’ll be damned if I let it stop me. One thing I know about the dark, is it must be faced. Not feared. Not ignored. Not fought. Not run from. And, for goodness sake, not given into.
That’s my weakness—giving in. I’m captivated by the dark. The stars, that milky stroke across the sky, the fleeting shadows, and the mystery draw me in. I could easily fall into the dark and let it consume me. Indeed, for much of the last four years I’ve had to hide in the dark to protect my skin, sanity, and immune system—staying away from sun and people.
Rod and I went to Dinosaur Provincial Park in September.
A month ago, I sat in my doctor’s office and tears trickled down my cheeks, my breath caught in my throat, and sobs rang from my chest. I held my heart like a hug—a way to comfort myself. My onocologist handed me the tissue box. I’d just been told that the treatment I’m on usually extends survival by about 10 months. It’s a hard thing to hear. I’d just turned 39 and the laughter of my best friend’s first child still rang in my ears from the day before. There’s always light in the darkness, those stars that make the shadows flicker.
It’s not easy getting bad news as the nights grow longer and days become colder. There’s fewer activities to distract me and I’m forced to stay still, to nest… and ruminate. Furthermore, my new treatment makes me quite fatigued, which suits the 16 hour-long nights, but not keeping busy. Still, I get up the next day and make a grocery list because, goodness, I’ve dealt with everything else ad nauseam.
But this is what I’m talking about. I can give in too easy. I can plan so much for darkness that may never come (some darkness always does though). But my weakness is also my strength, because I can also plan for miserable things that need to be planned for. Not that I think death is miserable or dark, per se. But, to be honest, I still like life quite a lot and want to get the full experience—the good and bad, the sublime and imperfect, the light and dark—before I become dust and soil. And, so, I am looking at options. I may be going to the States next year for treatment, if I qualify. There’s a clinical trial coming to Calgary that may be a strong option for me.
And so, I dwell in the darkness of the season, for a bit. I go for walks when the low-hanging sun hits my face. I let stars guide me to new horizons and opportunities, being ready for what may come.
It’s hard to believe I have cancer. Four years ago I had a port implanted in my chest and started chemotherapy. Four years later, I’m still here. I’m still on chemotherapy. It still feels surreal. Nonetheless, I am here.
I joked with my dermatologist that I’ve had cancer for as long as it takes to do an undergraduate degree. Although many of the feelings of grief, disbelief, wonder, and passion for living echo what I felt four years ago, there is also the journey I have been on and growth I have had in this time. Surprisingly, the hardest lessons have not been the innumerable drug names or what these drugs are doing or what all the different proteins and enzymes in my bloodwork are showing. The hardest lessons are what I’ve learned about cancer and the profound impacts of ableism on us—all of us. To this latter point, I’ll say that I still struggle with the ableist notions from which my understanding of the world grew, but I’m improving.
I’ve touched on my ableist belief system and my relationship with wellness culture before in my writing. Ableism is so ubiquitous and entrenched in society that it is a hard to shake. However, I’m becoming more adept at spotting ableist ideas and phrases now. This practice of spotting has allowed me to deepen my imagining of a world that’s possible if we treated disability differently.
I have much work to do toward this imagining. First, I must stop blaming myself for cancer. At least weekly, I see a post on social media or read an article or overhear a conversation where the individual with cancer is blamed for their cancer or rewarded for their remission: “if only they had been more healthy…”, “if only they had eaten better…”, “if only they had decided to do a complete 180 on their life to fight cancer…”. I understand how blame—or, to say it more gently, a cause and effect story—can give a sense of control and safety. And while I often think of myself as someone who is able to dwell in uncertainty, it is a draining practice. And so, I resort to ableism and the blaming of my imperfect body and my imperfect will: for skipping a workout, or eating a slice of cake, or staying out late for a few more songs to dance to.
I imagine, in a less ableist world, we see more grey areas—the magic in the liminal spaces—and are able to dwell in that uncertainty. We are not afraid of the vast differences in bodies and minds, allowing us to be gentler with “imperfections.” Perhaps we don’t use the words ‘perfection’ or ‘imperfection’ anymore. Perhaps, as our need for control gently dissolves, we see our connections to one another rather than the us-versus-them that’s awakened by fear and blame. Perhaps we feel our shared responsibility to care for our collective wellbeing. Cancer is not caused or reversed or worsened by the sole actions of an individual—it takes a community. It really does. And I am so thankful for mine.
For those who have stuck with me, thank you. Enough philosophizing; here’s an update of happenings since my last post to this site: I completed my creative writing certificate from the University of Calgary and am continuing to create and submit words. I pursued a liver transplant, but have decided that it is not right for me at this time. This is a tough decision to make; liver transplants do offer some patients many years of survival. However, recurrence rates are high (in my opinion), the surgery is risky, and I’d have more chronic health issues to manage for the rest of my life. I continued the chemotherapy treatment that caused skin irritation until June, at which point my health team and I decided it best to look at other treatments. Now, I am back on the chemotherapy regimen I had four years ago, with the hopes that it will be as effective as it was then and that the associated neuropathy holds off for a while. I also went to Iceland with my friend in March, which was an extraordinary adventure to an absolutely unique place. While travel was stressful for me, I somehow managed not to get sick and enjoy much of Icelandic culture and scenery.
I’m looking forward to the rest of 2025 and to being able to enjoy the outdoors a bit more now that my skin is not as sensitive to the sun. I’ll continue to write and learn (for another four years, at least, hopefully). And I’m continuing to look for emerging cancer treatments that might work for me; there are some promising therapies on the way to Canada, so stay tuned.
It’s hard to believe this is my life. It’s hard to accept my illness. But I’m getting better at that too!
It’s colorectal cancer awareness month. I haven’t “celebrated” this month in the past as I’ve been dealing with resentment and anger that held me back from believing anything could be done. But I’ve done a lot of work and feel ready to share my journey in hopes that it may help others.
My most significant barrier in this journey was getting the testing I needed. I want to encourage people, especially young people, to advocate for themselves when they have symptoms. Symptoms of colorectal cancer include unusual bowel habits, blood in stool, abdominal pain, fatigue, and unexplained weight loss (among others: https://cancer.ca/en/cancer-information/cancer-types/colorectal/signs-and-symptoms).
My first symptom was blood in my stool. I brought this concern to my family doctor who told me it was hemorrhoids without any assessment. Still concerned, I went to two walk-in clinics, but they said they were unable to order tests as I’d need follow-up that they couldn’t provide and repeated that it was probably just hemorrhoids anyway given my age and good health. I switched family doctors. My new doctor seemed unconcerned about my symptoms, repeating that I was young and healthy. In 2020, I had an episode of such painful abdominal cramps that I went to emergency. The doctor there told me it was menstrual cramps and menstrual bleeding; as a 34-year-old with ample experience of both, I knew this wasn’t the case, but because of Covid, I had no one with me to deny this, and I was in too much pain at the time to speak up. I followed up with my family doctor and was referred for a colonoscopy; I was put on the non-urgent list.
The epic inflatable colon courtesy A Healthier Michigan/flickr
What is described above, unfortunately, is all too common of a story for young people. By the summer of 2021, I felt sick constantly, had trouble eating, experienced poor bowel habits, and always felt exhausted. I went to the emergency again and was told I had to pick one thing that was bothering me, which at the time was my chest (it turned out the metastasis in my liver was pushing on my lungs and causing pain). The x-ray showed spots on my liver. They didn’t say cancer, but I knew this wasn’t good. My family doctor followed up the next day and changed my colonoscopy order to urgent. And that’s how this whole journey began.
I do not want other people to go through this. If I could make one suggestion that would have helped me, it would be to bring people with you to appointments! Tell your supporter what concerns you and ask for their help pushing back. I’ve been a very independent person for much of my life, but I found it difficult when I was in pain to speak up. Not only that, but it was hard for me to admit that something could be wrong despite knowing that early cancer detection leads to better outcomes.
One thing that constantly tripped me up was being “healthy.” I can’t count the number of times doctors would ask me, “Are you healthy?” What does that even mean? I’ve placed a high value on health since I was a teenager. Being a competitive swimmer, outdoorsy person, and diabetic made me learn how to take care of myself. Sure, I sometimes went too far, but I’ve always prided myself on healthy habits. It was this pride that ultimately made me believe doctors when they assured me that someone healthy like me wouldn’t have something like cancer! Since then, I’ve discovered lots of healthy people get cancer: marathon runners, weight lifters, and regular people with great routines. There are many pathways and variations to colon cancer and any cancer.
I have heard friends say that they don’t see a point in being healthy if someone like me could get cancer. Well, here’s the thing: I value having the healthy habits I had before cancer. It took me a long time (42 months at least) to overcome my resentment, but here I am. For one, my healthy habits brought me benefits as I practiced them (joy, self-discovery, better emotional regulation, great poops, better blood sugar management, etc). For two, it’s been easy for me to continue these habits through treatment, which has been helpful. And for three, I believe some of my recovery and stability can be attributed to these habits.
For me, healthy habits include
Maintaining a strong social network. I love my book clubs, writing groups, friend circles, and one-on-one hangs. This has become vital as I navigate cancer, yet the work I did throughout my 20s and the people who reciprocated have proven invaluable in my support network. As social media and smartphones make loneliness all the more pervasive, it is critical that we put in the effort to maintain in-person connections as much as we can.
Paying attention to stress. I started a serious meditation practice around 2017. It helped me move slower and be more aware of my feelings. At the same time, I started seeing a CBT psychologist who helped me look for stress warning signs and practice emotional regulation. I’m grateful to my mom, who modelled work-life balance. Although I’m a real go-getter, I have always tried to keep work to 8 hours a day. However, my enthusiasm for life and fear of boredom cause some overcommitment issues, which I’m working on.
Exercising! Exercise is one of my favourite things. I love how it makes me feel, positively affects my mood, and helps me control my blood sugar. I love going for morning jogs and discovering the places where I am (I have seen wildlife like armadillos, storks, deer, and so much more)! Morning jogs let me catch beautiful sunsets and capture the most serene moment of the day. Swimming allowed me time for quiet reflection and focus. I’ve been lucky to have wonderful ways to get to work that bring me through forests and along rivers, even if they take a bit longer.
Eating whole foods. I’ve always loved cooking from scratch. I love playing with flavours and how satisfying a home-cooked meal is. I used to indulge in much more cake and candy than I do now. And I feel a lot better cutting back on those things. My tummy is a lot happier, and my energy is even. I’m hopeful my high-probiotic, high-fibre diet pre-cancer—and a bit of luck—helped my colon get back on track after surgery! Butt [sic[, you got to love your microbiomes.
Taking care of my environment. Oddly, I never thought of this as a health measure. I care about the Earth, so I bought organic, local, and non-toxic products. Now that I have cancer, this comes up from time to time, and apparently what’s good for the Earth (low chemicals, low plastics, sustainable manufacturing practices) is also good for us! Go figure. It feels good to be doing something that helps the planet and us, and it’s nice that I don’t have to learn responsible purchasing habits from scratch.
Living meaningfully. One thing that lifted my spirits more than anything at the time I was diagnosed was having felt I lived a good life. I chose meaningful work, made choices based on my values, strove to minimize harm, and helped where I could. I embraced life and kept an open mind to experiences, leading to a sense of fullness. Living meaningfully has made the fear of death unthinkable for me. Ever since my dad died, I have always wanted to go to sleep knowing that if I should die tomorrow, I’d have lived well.
Sleeping has been the toughest thing for me. I’m still working on it, but I know it’s essential. I’ve always known sleep is important and aimed for the 7–8 hours a night, but I struggled in this hyper-lit and connected world. I have started dedicating more to a good sleep routine and love it. I feel like a regular routine and good sleep help me focus, but cancer treatment is also weird and zaps a lot of my energy. Still, I appreciate a good sleep routine.
Having financial stability. This one is tough because there are so many factors that affect my financial well-being, such as my family history and support (plus a pretty good settlement after a car hit me), which I do recognize not everyone has. Still, learning good financial practices early in life, like becoming confident in budgeting and investing, has served me well and has made me less stressed in this cancer journey.
I’m sorry to say that these habits won’t definitely prevent cancer. But, I do think they have helped me survive through cancer. I have resented this, and I have resented that I didn’t get to undergo some miraculous lifestyle change that somehow reversed my cancer; I don’t even know if I believe that is possible without modern medicine.
Nonetheless, the benefits of healthy living are vast, and I’d encourage everyone to try out one or two this year. And advocate for testing!!!
Another milestone approaches, one I’d never thought I’d reach: my fiftieth round of chemo. Honestly, I thought I’d have left cancer well behind me by this point. There’s a small chance I have; there’s many chances I haven’t. I’m choosing a practical optimism at every opportunity I get, but to be honest, it’s difficult to deal with the uncertainty of what this actually means.
The remaining three tumors in my liver (each the size of dice) appear to be largely calcified—like little skeletons buried in the vibrant ecosystem of my liver. I’m so grateful and awed by the ways the body strives to live. And, I’m grateful for medicine, and the ongoing development of new and better tests and therapies. The thought of going off of the treatment that has kept me alive for the last thirty-two months is frightening, while also relieving (two seemingly competing truths existing together). But even to be here is amazing. Even just fifteen years ago, I wouldn’t have had access to the same drugs I have today.
This got me thinking. I looked up causes of death through history. The first thing I saw was that only a century ago almost fifty percent of people died before they were adults. Nowadays, that number is below one percent. Frankly, I’d be dead if I was born a century earlier. I had pneumonia when I was around eight years old. It would have killed me a hundred years ago, and it could have killed me had I not been born in a wealthy country even now. Type 1 diabetes was a miserable death sentence a century ago. It’s frankly amazing that discoveries and innovations, combined with a handful of other close calls, have given me as much life as I have. And this is probably true for nearly half of the people reading this, half of your friends, half of your coworkers, half of the brilliant people making these discoveries.
I have a lot of gratitude these days. It keeps me uplifted and hopeful. It helps me see all beings as caring and giving of their best. It helps me see and feel my place in the web of being. Basically, it helps me just to see so much. I think about being a kid, and writing thank you cards to family members after Christmas gifts were exchanged. It was a simple practice of gratitude that informed my inclination to the practice later in life. And am I ever thankful for that too.
I remember (perhaps inaccurately, but to the best of my knowledge) being part of the health and safety committee at work, and as part of a mental health strategy, we implemented a thank you board in the office. It was largely a success, but concerns were raised that we shouldn’t be thanking people just for doing their jobs. I get where people are coming from with this argument, but I put forth that thanking someone is a rather simple action in comparison to the meaningful effect it can have. And who knows, some people struggle to get out of bed in the morning, how does some recognition change their morning? Others may feel like an imposter, or face any other struggles that plague us in the workplace, how does some appreciation change their work? I think about how differently I show up to conversations when someone simply shows appreciation for the effort I have put into a piece of work, even if my efforts turn out to be misinformed or otherwise shit.
In this spirit of appreciation, I’ll stop with the sappy, self-helpy vibes and say that the best thing these days is my hair. Although there is chemo-induced thinning, there is also chemo-induced curls. After getting over the initial confusion of coping with this newfound mess, I found a style that I adore. I honestly think that this is the first time in my life that I’m genuinely pleased with how my hair looks. It’s a funny fluff on the top of my head, which is perfect for my face shape, looks the perfect amount of androgynous, actually requires very minimal styling, and the curl shampoo and conditioner moisturizes my scalp so no more dry skin flakes! It’s a bit weird to be overjoyed with a hairstyle that was caused by cancer treatment, but there you have it. Thanks chemo!
Chemo curls always look cool
I’ll leave it there for now. I’ve been changing and learning (and being grateful for my consistently curious self) these last thirty-two months. Perhaps I’ll say more next time. Be well and be grateful!
December had been coming to a close with a glow of optimism. In the final weeks of 2024, I had a CT and MRI scan. I expected good results, given that September’s tests showed an excellent response to the new drugs I was on. My continued skin problems should have been a sign that the drugs were working on my tumours as much as they were irritating my skin. As you might detect in my wording here, the scans were not great, but not terrible. Heck, maybe they’re better than I’m giving them credit for. The lesions in my liver remain the same size as they were in September, which means I probably won’t qualify for surgery and that I may need to move onto another treatment path (or not) yet again. This isn’t uncommon, but it still sucks. In particular, the ongoing uncertainty sucks.
With this news, the new year didn’t have the “turning a new page” glow that I often experience around this time.
After ringing in two new years while on chemo and having been in treatment for so long, the fascination with it all–which gave some excitement to the otherwise horrendous experience–has largely faded into the dull hum of life. (This is part of the reason I don’t post as much anymore). I’ve gotten so much bloodwork and so many scans that they all feel mundane. One pathetic highlight of the last year was finding free parking near the hospital, which also provides a rather scenic and peaceful walk before appointments.
It feels like I’ll be on this journey forever, and I don’t know what that means or looks like.
Although uncertainty about the future is a fact of all our lives, going into 2024 feels like a particularly unwelcome point of uncertainty for me. I still look forward to the fruition of some projects, but I worry about my ability to be fully present. I expect myself to be the person I was before diagnosis, which just isn’t the case anymore. I have chosen projects that give me the flexibility and accommodations I need. Still, I remember when prioritizing flexible work hours and modes of work was less important. Navigating my abilities and limitations makes everything more complicated.
I try to find grounding, joy, and hope, but sometimes the ominous grey clouds do not clear as readily.
I am frustrated by the slow pace at which I operate. For one, treatments put me out for a few days, followed by a few more slow days as I recover my energy. I have so many healthcare appointments to manage. My mental ability is hit or miss; I find myself forgetting a lot more and finding it hard to focus for extended periods of time. I lose words. I become overwhelmed with how best to take care of myself. I worry about people noticing my difficulty forming and expressing coherent thoughts.
I’m practicing several ways to cope, and I am grateful for a younger version of myself who developed many healthy strategies.
Of all the healthy routines I’ve practiced, I’ve always struggled with enjoying the present moment. A moment can be a fraction of a second or extend over millennia. The past and future press into even the most minuscule moment, shaping it. I can’t divorce the history of my body and surroundings from the millisecond I reside in, the present. Likewise, although in a more obscured way, I am aware of the buzzing of the future that my body enters and builds from this moment. For these reasons, I struggle to find presence.
Is the present a tiny speck in the universe of time? By the time I register what my senses perceive, the present is past, and I am catapulted against the portal to the future.
I am working on being present. That’s the most sure thing I can lay down for 2024. I don’t know where my health journey will take me, but the projects I’m working on are full of possibilities, and I look forward to them taking their shape. For me, I’ll be sitting in the present each day and trying to sense its fullness. Maybe this year, I’ll find it.
As I write, the turning over of the Gregorian clocks is looming closer. Many of us will write resolutions or tuck them away in our heads as another thing to do and accomplish this coming year. The resolutions will run the gamut of creative accomplishments, travel, relationship goals, self-improvement, and wellness aspirations. The latter is one of the more common.
I was browsing through some of my old journals recently and observed my consistent value for health and wellness. My drive for self-improvement has been consistent since I was a teenager, if not earlier. Around grade three, I remember learning that laughter makes you live longer. I was obsessed with laughing since then. I quickly picked up a staggering list of wellness rituals that would, supposedly, add years to my life. This made getting cancer at age 34 a great disappointment, to say the least. But perhaps it saved me from getting cancer in my twenties, or maybe I’m just unlucky; who knows? Nonetheless, my perspectives on health and wellness have undergone much scrutiny since my diagnosis 29 months ago. I’ve now come to believe the rituals I’ve incorporated into my life have positively impacted me. They’ve added richness and fulfillment to my being, which has made this life quite enjoyable. I want to share some of that with you and the stories behind how I got there.
Before getting into the thick of it, I can’t deny that there were struggles. As a teenager diagnosed with type 1 diabetes at age 15, I struggled with diet, restricting and binging food to control my blood sugars and weight. Although this was before the rampant wellness misinformation found on social media, I was still drawn in by pop wellness. My teenage mind was so status-focused that I was quickly drawn into trends, as are many teenagers whose minds are built to build their social capital. This is all to say I’ve had my experiences in the not-so-good and ill-informed wellness cultures, but I think I’ve developed a more critical eye over the years.
Regarding happiness, some of the most positive work I’ve seen recently is from cognitive scientist and professor of psychology Dr. Laurie Santos. As much as I love self-improvement, I was skeptical of “self-help” and “happiness” literature for most of my life. I scorned books promoting happiness; I didn’t believe they’d hold that the recipe I found brought happiness to my life. And, frankly, I found my life full of joy and doubted these books would have much more to offer. Having faced a few life-changing tragedies in my youth, I knew that happiness came easier after processing the so-called “negative” emotions, which I doubted self-help books would address. I knew that life was not a constant state of happiness, but rather an overall happier-ness (this may sound familiar to people who’ve heard about Oprah and Arthur Brook’s new book, Build the Life You Want). Despite all these beliefs, I enrolled in Dr. Santos’ Science of Well-being course a few years ago with some friends. I found her approach refreshing, and I have been an avid listener—and sharer—of her podcast, “The Happiness Lab,” ever since. She offers a science-backed approach to well-being without the toxic-positivity aspects, and she acknowledges that sometimes life sucks. Still, it is possible to rewire ourselves for better experiences. For more about this, watch this quick video:
The video provides a nice framing for me to explore well-being and what I’ve learned over my life, particularly since being diagnosed with cancer.
Intuitions
Intuition is the first self-help paradigm Dr. Santos tackles in the above video, stating that many of our intuitions about what will make us happier (more money, material possessions, job promotions, marriage, etc) are misguided.
In late junior high school, I longed to be one of the popular kids. I thought hanging around cool people, wearing the right clothes, and doing my makeup right would bring me this popularity that felt so important. It was a struggle, and I soon realized there was no top of the pyramid, only ideals I would never accomplish. That’s the thing with these misguided intuitions: there is no top of the pyramid; it’s an endless hedonic treadmill to tire ourselves out on.
Another thing I learned around this time was that I would not be a top athlete. I don’t have a natural athlete’s body, but I enjoy competitive swimming. When I understood this fact, I realized I could work hard to achieve some achievable goal, but other swimmers would always outswim me. If I reached the top, I’d be outswum the next day. I chose to be happy with what I had. I had my team spirit and enthusiasm and showed up to every practice with a positive attitude. Focusing on my strengths made me feel good.
These practices have continued throughout my life. I often reflect on what is enough for me. Do I need to be at the top of the pyramid? Do I need to be better than those around me? While I strive to do well at my jobs and take in as much of life as possible, I recognize that enough is being able to live within my means and that constant striving is more stressful than rewarding. Possessions or achievements don’t bring me long-term happiness Which brings me to nicely to the happiness “rewirings” that Dr. Santos shares:
Social Connections
I switched schools in grade 10 to take the IB program, leaving behind many of the friendships I had made since Kindergarten. While I hadn’t completely divorced myself from the ideals of materiality, I entered my new school, most determined to make friends and less concerned about popularity. I shortened my name to Kat and told myself I couldn’t be shy. I read up about how to make friends: join clubs, ask questions, be curious, be attentive, take an interest in others, smile, and be interesting (read books, have hobbies, etc). And it worked out. I found my social group and had many adventures, from movie nights to rock climbing to making music. The lessons I practiced about connecting to people and making friends served me well.
When I was first diagnosed with cancer, I retreated behind social media and TV. It didn’t serve me well. I am lucky to have friends who show up, check in on me, and invite me on walks. Social events (over Zoom) were far more helpful than watching an entire season of British Bake-Off in one day. I strive to create an active social calendar to safely connect with friends and my community. Although our third spaces may be dwindling, I believe it is still possible for anyone to find a hobby, sport, book club, or volunteer endeavour that can foster friendship and social connection on a regular, ongoing basis. The efforts to join and make friends are necessary, albeit difficult.
Other-orientedness
When I graduated from University, I got a self-help book and read it. The only advice I remember from it was to give at least one compliment daily. This was easy enough, and I started to do this. The joy I brought to other people was remarkable.
After a few months of living a secluded life with cancer, I realized I could no longer wait for this terrible disease to go away or kill me. I needed to connect, and I needed to put my skills to use. I needed some more other-orientedness in my life. I searched the volunteer websites and found opportunities where I could lend my strengths. The improvement in my mood was instantaneous. Although I couldn’t return to work (where I worked on human/other-oriented designs), I could still help others.
Gratitude and Savouring Moments
When my dad died in 2002, I became so keenly aware of the preciousness and fragility of life. I realized how easily I could die at any moment. Whenever I think about my dad, I am reminded of life’s preciousness, so I stop, take a deep breath, and soak it in. I’ve adopted habits like toasting before eating, stopping when I notice something beautiful, and allowing myself to laugh as much as I want. I also keep a gratitude journal, frequently capturing moments worth savouring.
I didn’t know how worthwhile this practice would be until I got my cancer diagnosis. Lying in bed some nights, the thoughts of my tenuous survival creeping in on me, I’d remember the good things in my life. Taking the time to be grateful and savour made those moments come to mind when I needed them most. I am so thankful to my past self for these memories, as they make me feel that no matter how long my life is, I’ve lived it well.
Exercise
I’ve been a regular participant in exercise for most of my life. Swimming was a huge part of my childhood and helped me immensely when tragedies occurred in my life. I loved escaping to the pool, paddling consistent strokes through the reliable water. I could take my mind off troubles and leave the pool feeling better, reset. I also found that exercise helped improve my diabetes control and mood for the day. When I settled into a well-connected community, I got rid of my car and depended on active transport. When choosing places to live, I prioritized natural places to walk, a gym, a nearby grocery store, and access to transit. I’d walk or bike on long, slow routes to and from work to prioritize time around nature. I took my time and made these movement moments as enjoyable as possible. The thing is, exercise doesn’t have to be a burden.
With cancer, I was encouraged by my healthcare team to walk about 30 minutes a day. Taking a gentle walk, especially in nature, was one of the most healing and relaxing things I could do. A walk outdoors can literally change my outlook for the entire day. When my chemo-induced cold and sun sensitivity make it challenging to get outdoors, I find more suitable times for walks or do yoga or dance sessions indoors when needed. As much as exercise can be laborious at times, I have more often than not felt more rewards than strain.
With all this said, I wanted to share some of Dr. Santos’ words from near the end of the video: “We’re going to have moments of fear or frustration or overwhelm. That’s part of being human. Our negative emotions are signals that are telling us something really important. Our sadness is there to tell us, ‘Hey, you’re missing something in life. You might need to make changes.’ … We shouldn’t try to wish them away. We just need to be able to regulate them in positive ways. The key, though, is that you have to put these strategies into practice, you can’t just learn about them.”
This ties back nicely to intuitions, where Dr. Santos began her talk. I understand that many people react quickly to emotions such as sadness, fear and disgust and hope to brush them aside quickly. These lead to coping mechanisms like denial, addiction, despair, and (this one I just learned about a few months ago:) internalized oppression. Part of happiness has to be practice, practicing the things that bring joy and practicing work that helps us heal those things we don’t want to face.
As if I haven’t rambled enough, self-care was a significant learning for me this year. There’s a general air around self-care similar to those happiness books I feared were only promoting toxic positivity and denied negative emotions. When I think about self-care, I envision baths, spas, yoga, a cup of tea, lighting a candle, etc. This year, I’ve found that self-care also involves things that aren’t so pleasant. Of course, those feel-good practices such as social connections, exercise, gratitude, giving, and savouring are all important. But, sometimes, you must sit in a sitz bath (NOT a bath) for 15 minutes every day, moisturize with lotions that leave you and all your clothing feeling greasy, take medications, and avoid those spas at risk of unpleasant infections. While I do my best to mitigate the displeasure, it’s not all eucalyptus and lavender.
I bought a print just before the pandemic lockdowns from Primal Screaming with Friends that shows a cat cleaning its butt (at the time, I bought it because I thought it would be funny to hang in my bathroom). It sums up my newfound perception of self-care. Sometimes self-care is doing those things that aren’t immediately pleasurable but contribute to well-being. Not that you have to, or should, engage in the least pleasurable exercises or keep friends who make you feel shitty; Find those exercises and friends you like. Self-care must consider the whole gamut of what you do to take of yourself.
And with that, I wish everyone a genuinely healthy 2024, filled with happiness and the ability to work through whatever life throws at you.
I’ve returned from a short birthday “vacation,” full of waterfalls, cedars, and lakes. Although side effects from my current chemo regime afflicted me, Rod and I were able to enjoy the peaceful days together (except maybe the part where I took us up a daunting service road in our tiny civic to see a cedar grove. I think the adrenaline of the drive added to our eventual enjoyment. Also, not the first time I’ve taken civics on such inadvisable drives).
I’ve been reading John O’Donohue’s Anam Cara (a Celtic word, meaning soul friend). Early on, he introduces the idea that the soul holds the body within it, rather than the soul being an entity within the body [Amazingly, when I asked Rod where his soul was, he said everywhere! For me, this was a bit of a revelation]. I loved the practice he offers of breathing in the soul, feeling the relationships I share with all that is around me, and how nourishing–maybe even healing–this is.
Beyond all else, I am immensely grateful for my friends and community. The walks and chats I’ve had with you have been so invigorating, and kept my optimism alive. Reading books, taking courses and doing workshops with you has fed my soul. The peaceful and reflective times where we’ve merely just soaked in each other’s presence has been nourishing. Your gifts of company, conversation, care giving, food, money, art and books [if you’ve lent me books, I will get them back to you, promise] have all been so appreciated. I keep many of these gifts in my living room with me so I am regularly reminded of you. Thank you thank you thank you!
In this exercise of gratitude, I am also extending these words to myself and to my more-than-human companions (the saskatoon bushes, the strawberry plants, the bluff and its grasses, the rivers, the squirrels…). I realize how fortunate I have been to find great friends in myself and in the landscapes, for with these friends I am never alone.
I am not hosting a gathering this year for my birthday, I have tried to schedule various one-on-one hangouts instead. Last year’s gathering–in the days before my liver and colon surgery–was hosted in appreciation of all that you’ve done for me. Although there’s no formal gathering this year, I just want to send everyone a big hug of gratitude, some nice pictures, and these closing words by John O’Donohue:
“A Friendship Blessing
May you be blessed with good friends. May you learn to be a good friend to yourself. May you be able to journey to that place in your soul where there is great love, warmth, feeling, and forgiveness.
May this change you. May it transfigure that which is negative, distant, or cold in you. May you be brought in to the real passion, kinship, and affinity of belonging.
May you treasure your friends. May you be good to them and may you be there for them; may they bring you all the blessings, challenges, truth, and light that you need for your journey.
May you never be isolated. May you always be in the gentle nest of belonging with your anam ċara.”
I want to share a bit of cancer-related grief I’ve been feeling recently. It might not seem huge, but grief doesn’t revolve around the ominous losses alone.
I’ve been a swimmer since before I have conscious memory. My grandparents and parents would take me to the pool at Village Square every Sunday until I started swimming competitively with the Dinos around age 12. Swimming was an escape for me during a couple particularly traumatic events in my childhood—a house fire and the sudden loss of my father. It was the only place I didn’t talk much about my life, allowing me to simply exist. Being in the water felt stabilizing in those tumultuous times, and I insisted on attending every practice I could.
My dad and I in the pool. I’ve been swimming since I was a baby!
After I retired from competition, I always bought gym memberships with access to a pool. Covid and cancer have changed that. Obviously, pools were closed with so much else when Covid struck in 2020. But, with my cancer diagnosis in the summer of 2021, I have only been able to take a few measured risks even though pools have reopened. Namely, a dip in the ocean and a visit to the Radium Hot Springs, both with ready access to showers and small, off-season crowds. The thing is, I have low neutrophils (a white blood cell key to fighting infections and healing tissue), and I can’t justify putting myself at increased risk from pools and water.
Low neutrophils have probably been my most impactful side effect. Yes, I detest all the hair on my bathroom floor, but thinning hair hasn’t bothered me too much since I prefer shorter hairstyles. Neuropathy (numbness in hands and feet) is mild in my case. I dislike the fatigue and chemo-brain, but it generally lasts only a few days. But low neutrophils (aka neutropenia) have delayed my treatments numerous times. Neutropenia makes me cautious in crowds and poorly ventilated areas. I take extra precautions when doing chores. My husband and I still wear masks almost everywhere. But even these adjustments don’t feel as significant as losing my access to swimming. I’ve felt less choice in letting go of swimming.
In the spirit of change and adaptation, I have found kayaking and canoeing a welcome return to the water, albeit no replacement for swimming. I still miss being in the water, gliding smoothly with a concentration on my stroke alone, enjoying my solitude. I can’t wait for kayak rentals to reopen for the season—only a week away! (Maybe I’ll buy a foldeable kayak this year.) Plus, I’m diving headfirst into a supportive three-day canoe expidition for young adults with cancer at Poisson-Blanc Reservoir in Québec next week. Nonetheless, the extended absence from water since last summer has contributed to my grief around swimming these past few months.
My BFF and I canoeing on the Bow River in Banff last summer.
Just a bit of mourning for the swimmer I am/was. Loss is loss in all its forms. I welcome change as I attend to the grief.
I don’t want to talk about cancer all the time, yet it pervades so much of what I share here. I expect the new year to bring a shift into more expansive writing. Here’s why:
At this time last year, I was settling into the cycles of chemo. The grief of diagnosis gave way to an urge to reconnect with myself and my community. Although treatment and my body’s healing still demanded much of my time throughout the year, I gradually sunk into connecting with my passions and giving what I had to offer. Over time, I spent more energy being me than worrying about cancer.
“No Self stands alone. Behind it stretches an immense chain of physical and—as a special class within the whole—mental events, to which it belongs as a reacting member and which it carries on.”
Erwin Schrödinger, My View of the World
I have found throughout the last year that cancer has undeniably shaped me and yet not become the sole definition of who I am, as I once feared it would. I don’t push away or deny cancer as part of my identity. I like to think I’ve been learning how to let cancer identity take the space it needs, no more and no less. In doing so, I’ve also found the parts of me that shine—an outdoor enthusiast, an active person, an art lover, an educator, and a designer. Oddly, as I’ve seen these parts, I’ve been drawn to the simple question of “who am I,” exactly? Like the Earth shifting from season to season, the “I” is so constantly in motion with the world around it that the question is not so simple.
As I tried to answer this question and connect with the threads woven throughout my life, I observed how the cancer thread integrates with them. I wish these threads wove into a tight braid because that would be an easy and narratively clean answer to that “who am I” question. In reality, these threads loosen into a fabric lovingly woven with odds, ends, and beginnings—an “I” entwined with a messy whole. First, I find I cannot be defined by cancer alone, nor by any single part. So, while cancer happened to me and the self which sits here today has undoubtedly been shaped by the experience, I am still me. Second, there is no single identity in cancer. For each person, cancer’s impact takes a different shape. I notice that while I have the same experiences as others in the community, there is much I don’t relate to also. I am still that piece of fabric so different than the others and still sharing threads. Instead of denying this new part of my identity, I allowed it in, which has led to healing and for myself to come forth. In this healing, I have affirmed that I love being outdoors, moving, preparing food to share, learning, and helping others to learn by designing experiences. These activities have happily appeared throughout my life and have made me feel settled in who I am.
“There is no single entity whose identity is changeless. All things are constantly changing. Nothing endures forever or contains a changeless element called a ‘self.'”
Thich Nhat Hanh, Thundering Silence: Sutra on Knowing the Better Way to Catch a Snake
As I’ve dove more into systems practice, the most astounding realization of the year has surfaced. Since I was a teenager, a piece of advice has clung to me: If you want to change the world, you must first change yourself. Before 2022, I interpreted this to mean that one needed to be perfect before entering into service work for others. If you know me, you know I didn’t take this entirely literally, but it still nagged at me and led me toward constant self-improvement. It’s only been over the last few seasons that I’ve understood how simply changing oneself changes the larger whole one is part of. As the fabric of the self changes, it pulls on the threads of the entire universe. Likewise, as the cancer experience integrates, it shifts the other parts of me and all to which I am connected.
So, I see how I have been shaped by every experience that has brought my consciousness here, and no one else shares that. This experience—reaching back to eternity—makes a self so incredibly unique and at once impossible without the whole. As I shift like the seasons, I change my future and all I am connected to. It sounds grandiose, but with the perspective of my size in the immensity of time and space, it also seems remarkably insignificant.
All this reflection and what I want to say is I’ll write more over the coming year as I continue to explore. I’m unsure if I’ll share it on this blog, but if I do and you follow me, you will likely find more stories and thoughts without cancer as a feature.
For now, know that I am recovering well from surgery (a colon and liver resection). My bowels have pulled through for me and are 95% up to pre-surgery function—amazing. I have a big scar running through my abdomen, and I am excited for summer weather to show it off. I’ll hopefully have another surgery in the next few months for the rest of my liver. If all goes well, I’ll be able to ease back into doing those things I love more full-time and reliably.
I had surgery on October 14th. The surgeons removed the tumors in my colon and from the left side of my liver. Recovery has been slow and challenging: Tubes, pokes, and hospital misadventures.
So many tubes. Tubes that send pain relief through my spine, one that carries out urine, another that drains my stomach, a tube for oxygen, tubes delivering nutrition and a tube for medicine. These tubes have stuck around for days and days. Most are gone now, but not all. I make the same joke to the nurses: I’m a meatball in spaghetti.
I’ve been poked with needles so many times. Every night another draw of blood. I have small veins that reject the use of IV tubes. For every new IV placement, there are probably three probing needles. Yikes. The bloody dots mark my arms and hands like constellations. I can count seven dots, forming what may be a dolphin with a ball.
I’ve been in the weirdest sectors of the hospital. Driven into what felt like a closet in the basement where they drained litres of fluid from my lung and belly. Where I nearly held my breath as I stared at shelves of various N95 masks and wondered what was going on.
Kat Dornian 