I'm an everyday walker, a passionate learner, and en educator creating experiences that grow eco and digital literacy. I'm living with stage IV colorectal cancer and type 1 diabetes, hoping to eek out as much life as possible before the cruel world takes me.
December had been coming to a close with a glow of optimism. In the final weeks of 2024, I had a CT and MRI scan. I expected good results, given that September’s tests showed an excellent response to the new drugs I was on. My continued skin problems should have been a sign that the drugs were working on my tumours as much as they were irritating my skin. As you might detect in my wording here, the scans were not great, but not terrible. Heck, maybe they’re better than I’m giving them credit for. The lesions in my liver remain the same size as they were in September, which means I probably won’t qualify for surgery and that I may need to move onto another treatment path (or not) yet again. This isn’t uncommon, but it still sucks. In particular, the ongoing uncertainty sucks.
With this news, the new year didn’t have the “turning a new page” glow that I often experience around this time.
After ringing in two new years while on chemo and having been in treatment for so long, the fascination with it all–which gave some excitement to the otherwise horrendous experience–has largely faded into the dull hum of life. (This is part of the reason I don’t post as much anymore). I’ve gotten so much bloodwork and so many scans that they all feel mundane. One pathetic highlight of the last year was finding free parking near the hospital, which also provides a rather scenic and peaceful walk before appointments.
It feels like I’ll be on this journey forever, and I don’t know what that means or looks like.
Although uncertainty about the future is a fact of all our lives, going into 2024 feels like a particularly unwelcome point of uncertainty for me. I still look forward to the fruition of some projects, but I worry about my ability to be fully present. I expect myself to be the person I was before diagnosis, which just isn’t the case anymore. I have chosen projects that give me the flexibility and accommodations I need. Still, I remember when prioritizing flexible work hours and modes of work was less important. Navigating my abilities and limitations makes everything more complicated.
I try to find grounding, joy, and hope, but sometimes the ominous grey clouds do not clear as readily.
I am frustrated by the slow pace at which I operate. For one, treatments put me out for a few days, followed by a few more slow days as I recover my energy. I have so many healthcare appointments to manage. My mental ability is hit or miss; I find myself forgetting a lot more and finding it hard to focus for extended periods of time. I lose words. I become overwhelmed with how best to take care of myself. I worry about people noticing my difficulty forming and expressing coherent thoughts.
I’m practicing several ways to cope, and I am grateful for a younger version of myself who developed many healthy strategies.
Of all the healthy routines I’ve practiced, I’ve always struggled with enjoying the present moment. A moment can be a fraction of a second or extend over millennia. The past and future press into even the most minuscule moment, shaping it. I can’t divorce the history of my body and surroundings from the millisecond I reside in, the present. Likewise, although in a more obscured way, I am aware of the buzzing of the future that my body enters and builds from this moment. For these reasons, I struggle to find presence.
Is the present a tiny speck in the universe of time? By the time I register what my senses perceive, the present is past, and I am catapulted against the portal to the future.
I am working on being present. That’s the most sure thing I can lay down for 2024. I don’t know where my health journey will take me, but the projects I’m working on are full of possibilities, and I look forward to them taking their shape. For me, I’ll be sitting in the present each day and trying to sense its fullness. Maybe this year, I’ll find it.
As I write, the turning over of the Gregorian clocks is looming closer. Many of us will write resolutions or tuck them away in our heads as another thing to do and accomplish this coming year. The resolutions will run the gamut of creative accomplishments, travel, relationship goals, self-improvement, and wellness aspirations. The latter is one of the more common.
I was browsing through some of my old journals recently and observed my consistent value for health and wellness. My drive for self-improvement has been consistent since I was a teenager, if not earlier. Around grade three, I remember learning that laughter makes you live longer. I was obsessed with laughing since then. I quickly picked up a staggering list of wellness rituals that would, supposedly, add years to my life. This made getting cancer at age 34 a great disappointment, to say the least. But perhaps it saved me from getting cancer in my twenties, or maybe I’m just unlucky; who knows? Nonetheless, my perspectives on health and wellness have undergone much scrutiny since my diagnosis 29 months ago. I’ve now come to believe the rituals I’ve incorporated into my life have positively impacted me. They’ve added richness and fulfillment to my being, which has made this life quite enjoyable. I want to share some of that with you and the stories behind how I got there.
Before getting into the thick of it, I can’t deny that there were struggles. As a teenager diagnosed with type 1 diabetes at age 15, I struggled with diet, restricting and binging food to control my blood sugars and weight. Although this was before the rampant wellness misinformation found on social media, I was still drawn in by pop wellness. My teenage mind was so status-focused that I was quickly drawn into trends, as are many teenagers whose minds are built to build their social capital. This is all to say I’ve had my experiences in the not-so-good and ill-informed wellness cultures, but I think I’ve developed a more critical eye over the years.
Regarding happiness, some of the most positive work I’ve seen recently is from cognitive scientist and professor of psychology Dr. Laurie Santos. As much as I love self-improvement, I was skeptical of “self-help” and “happiness” literature for most of my life. I scorned books promoting happiness; I didn’t believe they’d hold that the recipe I found brought happiness to my life. And, frankly, I found my life full of joy and doubted these books would have much more to offer. Having faced a few life-changing tragedies in my youth, I knew that happiness came easier after processing the so-called “negative” emotions, which I doubted self-help books would address. I knew that life was not a constant state of happiness, but rather an overall happier-ness (this may sound familiar to people who’ve heard about Oprah and Arthur Brook’s new book, Build the Life You Want). Despite all these beliefs, I enrolled in Dr. Santos’ Science of Well-being course a few years ago with some friends. I found her approach refreshing, and I have been an avid listener—and sharer—of her podcast, “The Happiness Lab,” ever since. She offers a science-backed approach to well-being without the toxic-positivity aspects, and she acknowledges that sometimes life sucks. Still, it is possible to rewire ourselves for better experiences. For more about this, watch this quick video:
The video provides a nice framing for me to explore well-being and what I’ve learned over my life, particularly since being diagnosed with cancer.
Intuitions
Intuition is the first self-help paradigm Dr. Santos tackles in the above video, stating that many of our intuitions about what will make us happier (more money, material possessions, job promotions, marriage, etc) are misguided.
In late junior high school, I longed to be one of the popular kids. I thought hanging around cool people, wearing the right clothes, and doing my makeup right would bring me this popularity that felt so important. It was a struggle, and I soon realized there was no top of the pyramid, only ideals I would never accomplish. That’s the thing with these misguided intuitions: there is no top of the pyramid; it’s an endless hedonic treadmill to tire ourselves out on.
Another thing I learned around this time was that I would not be a top athlete. I don’t have a natural athlete’s body, but I enjoy competitive swimming. When I understood this fact, I realized I could work hard to achieve some achievable goal, but other swimmers would always outswim me. If I reached the top, I’d be outswum the next day. I chose to be happy with what I had. I had my team spirit and enthusiasm and showed up to every practice with a positive attitude. Focusing on my strengths made me feel good.
These practices have continued throughout my life. I often reflect on what is enough for me. Do I need to be at the top of the pyramid? Do I need to be better than those around me? While I strive to do well at my jobs and take in as much of life as possible, I recognize that enough is being able to live within my means and that constant striving is more stressful than rewarding. Possessions or achievements don’t bring me long-term happiness Which brings me to nicely to the happiness “rewirings” that Dr. Santos shares:
Social Connections
I switched schools in grade 10 to take the IB program, leaving behind many of the friendships I had made since Kindergarten. While I hadn’t completely divorced myself from the ideals of materiality, I entered my new school, most determined to make friends and less concerned about popularity. I shortened my name to Kat and told myself I couldn’t be shy. I read up about how to make friends: join clubs, ask questions, be curious, be attentive, take an interest in others, smile, and be interesting (read books, have hobbies, etc). And it worked out. I found my social group and had many adventures, from movie nights to rock climbing to making music. The lessons I practiced about connecting to people and making friends served me well.
When I was first diagnosed with cancer, I retreated behind social media and TV. It didn’t serve me well. I am lucky to have friends who show up, check in on me, and invite me on walks. Social events (over Zoom) were far more helpful than watching an entire season of British Bake-Off in one day. I strive to create an active social calendar to safely connect with friends and my community. Although our third spaces may be dwindling, I believe it is still possible for anyone to find a hobby, sport, book club, or volunteer endeavour that can foster friendship and social connection on a regular, ongoing basis. The efforts to join and make friends are necessary, albeit difficult.
Other-orientedness
When I graduated from University, I got a self-help book and read it. The only advice I remember from it was to give at least one compliment daily. This was easy enough, and I started to do this. The joy I brought to other people was remarkable.
After a few months of living a secluded life with cancer, I realized I could no longer wait for this terrible disease to go away or kill me. I needed to connect, and I needed to put my skills to use. I needed some more other-orientedness in my life. I searched the volunteer websites and found opportunities where I could lend my strengths. The improvement in my mood was instantaneous. Although I couldn’t return to work (where I worked on human/other-oriented designs), I could still help others.
Gratitude and Savouring Moments
When my dad died in 2002, I became so keenly aware of the preciousness and fragility of life. I realized how easily I could die at any moment. Whenever I think about my dad, I am reminded of life’s preciousness, so I stop, take a deep breath, and soak it in. I’ve adopted habits like toasting before eating, stopping when I notice something beautiful, and allowing myself to laugh as much as I want. I also keep a gratitude journal, frequently capturing moments worth savouring.
I didn’t know how worthwhile this practice would be until I got my cancer diagnosis. Lying in bed some nights, the thoughts of my tenuous survival creeping in on me, I’d remember the good things in my life. Taking the time to be grateful and savour made those moments come to mind when I needed them most. I am so thankful to my past self for these memories, as they make me feel that no matter how long my life is, I’ve lived it well.
Exercise
I’ve been a regular participant in exercise for most of my life. Swimming was a huge part of my childhood and helped me immensely when tragedies occurred in my life. I loved escaping to the pool, paddling consistent strokes through the reliable water. I could take my mind off troubles and leave the pool feeling better, reset. I also found that exercise helped improve my diabetes control and mood for the day. When I settled into a well-connected community, I got rid of my car and depended on active transport. When choosing places to live, I prioritized natural places to walk, a gym, a nearby grocery store, and access to transit. I’d walk or bike on long, slow routes to and from work to prioritize time around nature. I took my time and made these movement moments as enjoyable as possible. The thing is, exercise doesn’t have to be a burden.
With cancer, I was encouraged by my healthcare team to walk about 30 minutes a day. Taking a gentle walk, especially in nature, was one of the most healing and relaxing things I could do. A walk outdoors can literally change my outlook for the entire day. When my chemo-induced cold and sun sensitivity make it challenging to get outdoors, I find more suitable times for walks or do yoga or dance sessions indoors when needed. As much as exercise can be laborious at times, I have more often than not felt more rewards than strain.
With all this said, I wanted to share some of Dr. Santos’ words from near the end of the video: “We’re going to have moments of fear or frustration or overwhelm. That’s part of being human. Our negative emotions are signals that are telling us something really important. Our sadness is there to tell us, ‘Hey, you’re missing something in life. You might need to make changes.’ … We shouldn’t try to wish them away. We just need to be able to regulate them in positive ways. The key, though, is that you have to put these strategies into practice, you can’t just learn about them.”
This ties back nicely to intuitions, where Dr. Santos began her talk. I understand that many people react quickly to emotions such as sadness, fear and disgust and hope to brush them aside quickly. These lead to coping mechanisms like denial, addiction, despair, and (this one I just learned about a few months ago:) internalized oppression. Part of happiness has to be practice, practicing the things that bring joy and practicing work that helps us heal those things we don’t want to face.
As if I haven’t rambled enough, self-care was a significant learning for me this year. There’s a general air around self-care similar to those happiness books I feared were only promoting toxic positivity and denied negative emotions. When I think about self-care, I envision baths, spas, yoga, a cup of tea, lighting a candle, etc. This year, I’ve found that self-care also involves things that aren’t so pleasant. Of course, those feel-good practices such as social connections, exercise, gratitude, giving, and savouring are all important. But, sometimes, you must sit in a sitz bath (NOT a bath) for 15 minutes every day, moisturize with lotions that leave you and all your clothing feeling greasy, take medications, and avoid those spas at risk of unpleasant infections. While I do my best to mitigate the displeasure, it’s not all eucalyptus and lavender.
I bought a print just before the pandemic lockdowns from Primal Screaming with Friends that shows a cat cleaning its butt (at the time, I bought it because I thought it would be funny to hang in my bathroom). It sums up my newfound perception of self-care. Sometimes self-care is doing those things that aren’t immediately pleasurable but contribute to well-being. Not that you have to, or should, engage in the least pleasurable exercises or keep friends who make you feel shitty; Find those exercises and friends you like. Self-care must consider the whole gamut of what you do to take of yourself.
And with that, I wish everyone a genuinely healthy 2024, filled with happiness and the ability to work through whatever life throws at you.
The longest night is approaching for those of us who reside in the northern hemisphere. After the winter solstice, we will begin our journey of turning closer to the sun once again. I’m sure many are looking forward to more light and longer days. But there are also special opportunities that come with the long nights (back to that in a second).
The waning of sunny hours has been difficult, bringing with it seasonal malaise and melancholy. The body longs to nest and sleep, but the deadlines of year-end and holiday stresses do not allow us to follow circadian inclinations, nor allow us to truly savour the community warmth and signs of life we crave. Perhaps, after the fires are lit, food is baked, and tea is steeped, there will be time to nestle into a blanket in the cozy company of others.
The opportunities to be near others, rest, and dream are important. Dreaming, in particular, is a chance to process and internalize memories as well as create and envision something new from the embers of the past. (Isn’t dreaming fascinating?) I love taking time during these long nights to reflect on the year and set plans for the new one.
Over the last year, my hope and optimism has continued to flourish despite the escalating tragedies around the world. I am finding and continuing to nurture the relationships with the many lovely people in my life who are infusing the world with good. I don’t know if I tell you, my friends, how valuable and important you are to this planet, but I think it every day and it gives me so much hope and inspiration. Although it often feels like our influences are small, I can see the good that comes from our being together, practicing gratitude, processing our pain, sharing, shifting, changing, and acting. Even though these gatherings often focus on efforts larger than myself, they’ve been immensely helpful in keeping my personal spirits lifted and getting me out of bed each day. I am eternally grateful for my friends and community.
I’ve had twenty-one rounds of chemo this year and have one left before 2023 wraps up. When I was first diagnosed, hearing this would have terrified me. I’m grateful for my body for putting up with the drugs, but it’s been difficult. I started a new medication in July, whose side effects included acne and rashes. To combat the acne, I was put on an antibiotic that caused sun sensitivity. By August I had developed such a severe rash that I’d spend entire days researching anything that would alleviate the pain. The rash turned out to be a severe sunburn with an area of infected skin as well, so I stopped the antibiotic and switched to something else. I have to maintain ongoing care for my skin, as well as everything else, but I’ve still had two more infections in the last few months. I’ve gone through about 2 liters of moisturizer in this time, and hundreds of bandages for my splitting skin. This past week has been a much needed respite. My face is a normal shade of pink, although I still have purple scarring from the acne down my arms, which seems to be slowly healing. I’m able to go to sleep without the fear of waking up in utter discomfort. I’m so grateful for my care team and dermatologist for helping me through this.
As things were getting better in September (after seeing a dermatologist), I enrolled in a creative writing program. One of my new year’s resolutions was to write 80,000 words and submit something to a magazine. I’m much behind on my word count (about 40,000 at the end of November), but I have sent out a few proposals, manuscripts and poems. So far, nothing published, but I’m enjoying the process immensely and learning a lot. At the end of this post, I’ve included a poem I wrote as a “talk-back” to John Lennon and Yoko Ono’s Imagine (a song that I’ve found myself humming a lot this year as I witness what humans can do to their kin).
One of my favourite memories from the year was the canoe expedition I got to go on in May with the Fondation Sur La Pointe Des Pieds. We canoed along Lac Poisson-Blanc in Quebec, guided and assisted by an incredible team, and accompanied by fellow cancer survivors. The power of this trip was unexpected. While I went in thinking the outdoor experience would be transformative, I less expected to be transformed by the people as well. The joy, camaraderie, and selflessness shared infused me with hope.
I realize there’s a lot I could say about this year. So many fantastic things have been happening. For next year, I’m still optimistic about getting another surgery to remove the remaining tumors. But here and now, on this long night in the tail of autumn, Rod and I are still here, cozy, and laughing a lot.
Winter Solstice
by Kat Dornian
Give yourself to slumber under ink black clouds. Moon below the horizon, light for when it’s dark. Lie in peaceful presence. Silhouette of the trees mythologies reverberate of songs, put us to sleep. Dream of all the beings, our kin gathered around, flames flicker in shadows mysteries of living found. Maybe someday you’ll join us under the sky’s moonlight. Stories, song and dancing long into the warm night. I hope someday you’ll join us maybe for just one tale. World quiet from the fighting a chance to just exhale.
I can name the metrics of violence: Bullets, bombs, blood shed Blast After blast Echoing in my head
You tell me I could measure love too But I don’t know what to count You said count the loaves of bread
Remembrance Day feels extra difficult this year as I watch more catastrophic acts of violence, power, and greed unleash their fury. I feel powerless; Many of us do.
This morning, I read Wendell Barry’s speech from 2013, titled “On Receiving One of the Dayton Literary Peace Prizes.” It seems appropriate that it is today when this chapter was where my bookmark took me. Some of his closing words struck me: “Peace comes from freedom, real freedom. It comes from responsibility, real acceptance of responsibility.” The line reminded me of the way bell hooks talks about the work of love. I’ve been enjoying both of these contemporary philosophers this year.
I don’t have much to offer in terms of answers for peace and responsibility. What I am finding to be true, again and again, is that the compassion and care we show for each other through acts like giving time, space, skill, and creativity (of which I include such acts as baking bread) make life livable. History shows us that our collaborative, collective, connective caring leads to flourishing, so that is what I chose to practice if only to make my own, little community lighter.
I’ve returned from a short birthday “vacation,” full of waterfalls, cedars, and lakes. Although side effects from my current chemo regime afflicted me, Rod and I were able to enjoy the peaceful days together (except maybe the part where I took us up a daunting service road in our tiny civic to see a cedar grove. I think the adrenaline of the drive added to our eventual enjoyment. Also, not the first time I’ve taken civics on such inadvisable drives).
I’ve been reading John O’Donohue’s Anam Cara (a Celtic word, meaning soul friend). Early on, he introduces the idea that the soul holds the body within it, rather than the soul being an entity within the body [Amazingly, when I asked Rod where his soul was, he said everywhere! For me, this was a bit of a revelation]. I loved the practice he offers of breathing in the soul, feeling the relationships I share with all that is around me, and how nourishing–maybe even healing–this is.
Beyond all else, I am immensely grateful for my friends and community. The walks and chats I’ve had with you have been so invigorating, and kept my optimism alive. Reading books, taking courses and doing workshops with you has fed my soul. The peaceful and reflective times where we’ve merely just soaked in each other’s presence has been nourishing. Your gifts of company, conversation, care giving, food, money, art and books [if you’ve lent me books, I will get them back to you, promise] have all been so appreciated. I keep many of these gifts in my living room with me so I am regularly reminded of you. Thank you thank you thank you!
In this exercise of gratitude, I am also extending these words to myself and to my more-than-human companions (the saskatoon bushes, the strawberry plants, the bluff and its grasses, the rivers, the squirrels…). I realize how fortunate I have been to find great friends in myself and in the landscapes, for with these friends I am never alone.
I am not hosting a gathering this year for my birthday, I have tried to schedule various one-on-one hangouts instead. Last year’s gathering–in the days before my liver and colon surgery–was hosted in appreciation of all that you’ve done for me. Although there’s no formal gathering this year, I just want to send everyone a big hug of gratitude, some nice pictures, and these closing words by John O’Donohue:
“A Friendship Blessing
May you be blessed with good friends. May you learn to be a good friend to yourself. May you be able to journey to that place in your soul where there is great love, warmth, feeling, and forgiveness.
May this change you. May it transfigure that which is negative, distant, or cold in you. May you be brought in to the real passion, kinship, and affinity of belonging.
May you treasure your friends. May you be good to them and may you be there for them; may they bring you all the blessings, challenges, truth, and light that you need for your journey.
May you never be isolated. May you always be in the gentle nest of belonging with your anam ċara.”
Give me dust Give me soil Give me grubby knees grass stains and bruises Give me sand in my hair and bugs on my shirt Fruit flies butterflies ladybugs and ants The caterpillars falling from trees The bumbles and buzzes of bees Give me berries to dry in my pocket Give me rose hips fresh peas and oak leaves Leave an acorn a half-chewed cherry a sunflower seed Leave a feather and give me a song call the crickets nocturnal cats and chirpy bats Give me the full moon the blue moon and the harvest moon Give me clouds when I’m out Sunshine when I’m in Give me rain and snow and long nights filled with stars Give me wool and warmth and a cup of tea from fallen leaves And when it melts Give me dust
This poem carries a lot of the same rhythm as Lemm Sissay’s “Some Things I Like” from his book Listener. Why is that? Well, I’ve been memorizing that poem because a poetry video I watched recommended memorizing a poem or two. I repeat the poem multiple times a day as I’m working on storing it, so when this call for dust came to me, the rest of the poem unfolded in the familiar rhythm.
Let me know what you think. What does “Give Me Dust” evoke or bring up for you?
I wrote this micro fiction a few months ago. Fantasy isn’t a genre I tend towards, but it was fun to explore in a tiny way like this. Enjoy!
A fierce growl rippled from the cave where Merrybevin was to gather lion-seed for next week’s ceremony. Her knees shook as she reached for her spell vial. She sprinkled the contents and hummed Grandfather’s spell. Her shaking knees unlocked. She squinted into the inky depths to see gleaming teeth. Merrybevin inched towards the roar within.
She hummed the spell again. The creature growled, “I don’t want to eat you, but I’m… starving.”
Merrybevin fumbled for a portion of meat. “This is all I have. Take it!”
A toothy grin formed, “You’re kind. This will do.” The tiny cat stepped out of the shadows, and delicately ate.
I want to share a bit of cancer-related grief I’ve been feeling recently. It might not seem huge, but grief doesn’t revolve around the ominous losses alone.
I’ve been a swimmer since before I have conscious memory. My grandparents and parents would take me to the pool at Village Square every Sunday until I started swimming competitively with the Dinos around age 12. Swimming was an escape for me during a couple particularly traumatic events in my childhood—a house fire and the sudden loss of my father. It was the only place I didn’t talk much about my life, allowing me to simply exist. Being in the water felt stabilizing in those tumultuous times, and I insisted on attending every practice I could.
My dad and I in the pool. I’ve been swimming since I was a baby!
After I retired from competition, I always bought gym memberships with access to a pool. Covid and cancer have changed that. Obviously, pools were closed with so much else when Covid struck in 2020. But, with my cancer diagnosis in the summer of 2021, I have only been able to take a few measured risks even though pools have reopened. Namely, a dip in the ocean and a visit to the Radium Hot Springs, both with ready access to showers and small, off-season crowds. The thing is, I have low neutrophils (a white blood cell key to fighting infections and healing tissue), and I can’t justify putting myself at increased risk from pools and water.
Low neutrophils have probably been my most impactful side effect. Yes, I detest all the hair on my bathroom floor, but thinning hair hasn’t bothered me too much since I prefer shorter hairstyles. Neuropathy (numbness in hands and feet) is mild in my case. I dislike the fatigue and chemo-brain, but it generally lasts only a few days. But low neutrophils (aka neutropenia) have delayed my treatments numerous times. Neutropenia makes me cautious in crowds and poorly ventilated areas. I take extra precautions when doing chores. My husband and I still wear masks almost everywhere. But even these adjustments don’t feel as significant as losing my access to swimming. I’ve felt less choice in letting go of swimming.
In the spirit of change and adaptation, I have found kayaking and canoeing a welcome return to the water, albeit no replacement for swimming. I still miss being in the water, gliding smoothly with a concentration on my stroke alone, enjoying my solitude. I can’t wait for kayak rentals to reopen for the season—only a week away! (Maybe I’ll buy a foldeable kayak this year.) Plus, I’m diving headfirst into a supportive three-day canoe expidition for young adults with cancer at Poisson-Blanc Reservoir in Québec next week. Nonetheless, the extended absence from water since last summer has contributed to my grief around swimming these past few months.
My BFF and I canoeing on the Bow River in Banff last summer.
Just a bit of mourning for the swimmer I am/was. Loss is loss in all its forms. I welcome change as I attend to the grief.
I don’t want to talk about cancer all the time, yet it pervades so much of what I share here. I expect the new year to bring a shift into more expansive writing. Here’s why:
At this time last year, I was settling into the cycles of chemo. The grief of diagnosis gave way to an urge to reconnect with myself and my community. Although treatment and my body’s healing still demanded much of my time throughout the year, I gradually sunk into connecting with my passions and giving what I had to offer. Over time, I spent more energy being me than worrying about cancer.
“No Self stands alone. Behind it stretches an immense chain of physical and—as a special class within the whole—mental events, to which it belongs as a reacting member and which it carries on.”
Erwin Schrödinger, My View of the World
I have found throughout the last year that cancer has undeniably shaped me and yet not become the sole definition of who I am, as I once feared it would. I don’t push away or deny cancer as part of my identity. I like to think I’ve been learning how to let cancer identity take the space it needs, no more and no less. In doing so, I’ve also found the parts of me that shine—an outdoor enthusiast, an active person, an art lover, an educator, and a designer. Oddly, as I’ve seen these parts, I’ve been drawn to the simple question of “who am I,” exactly? Like the Earth shifting from season to season, the “I” is so constantly in motion with the world around it that the question is not so simple.
As I tried to answer this question and connect with the threads woven throughout my life, I observed how the cancer thread integrates with them. I wish these threads wove into a tight braid because that would be an easy and narratively clean answer to that “who am I” question. In reality, these threads loosen into a fabric lovingly woven with odds, ends, and beginnings—an “I” entwined with a messy whole. First, I find I cannot be defined by cancer alone, nor by any single part. So, while cancer happened to me and the self which sits here today has undoubtedly been shaped by the experience, I am still me. Second, there is no single identity in cancer. For each person, cancer’s impact takes a different shape. I notice that while I have the same experiences as others in the community, there is much I don’t relate to also. I am still that piece of fabric so different than the others and still sharing threads. Instead of denying this new part of my identity, I allowed it in, which has led to healing and for myself to come forth. In this healing, I have affirmed that I love being outdoors, moving, preparing food to share, learning, and helping others to learn by designing experiences. These activities have happily appeared throughout my life and have made me feel settled in who I am.
“There is no single entity whose identity is changeless. All things are constantly changing. Nothing endures forever or contains a changeless element called a ‘self.'”
Thich Nhat Hanh, Thundering Silence: Sutra on Knowing the Better Way to Catch a Snake
As I’ve dove more into systems practice, the most astounding realization of the year has surfaced. Since I was a teenager, a piece of advice has clung to me: If you want to change the world, you must first change yourself. Before 2022, I interpreted this to mean that one needed to be perfect before entering into service work for others. If you know me, you know I didn’t take this entirely literally, but it still nagged at me and led me toward constant self-improvement. It’s only been over the last few seasons that I’ve understood how simply changing oneself changes the larger whole one is part of. As the fabric of the self changes, it pulls on the threads of the entire universe. Likewise, as the cancer experience integrates, it shifts the other parts of me and all to which I am connected.
So, I see how I have been shaped by every experience that has brought my consciousness here, and no one else shares that. This experience—reaching back to eternity—makes a self so incredibly unique and at once impossible without the whole. As I shift like the seasons, I change my future and all I am connected to. It sounds grandiose, but with the perspective of my size in the immensity of time and space, it also seems remarkably insignificant.
All this reflection and what I want to say is I’ll write more over the coming year as I continue to explore. I’m unsure if I’ll share it on this blog, but if I do and you follow me, you will likely find more stories and thoughts without cancer as a feature.
For now, know that I am recovering well from surgery (a colon and liver resection). My bowels have pulled through for me and are 95% up to pre-surgery function—amazing. I have a big scar running through my abdomen, and I am excited for summer weather to show it off. I’ll hopefully have another surgery in the next few months for the rest of my liver. If all goes well, I’ll be able to ease back into doing those things I love more full-time and reliably.
I had surgery on October 14th. The surgeons removed the tumors in my colon and from the left side of my liver. Recovery has been slow and challenging: Tubes, pokes, and hospital misadventures.
So many tubes. Tubes that send pain relief through my spine, one that carries out urine, another that drains my stomach, a tube for oxygen, tubes delivering nutrition and a tube for medicine. These tubes have stuck around for days and days. Most are gone now, but not all. I make the same joke to the nurses: I’m a meatball in spaghetti.
I’ve been poked with needles so many times. Every night another draw of blood. I have small veins that reject the use of IV tubes. For every new IV placement, there are probably three probing needles. Yikes. The bloody dots mark my arms and hands like constellations. I can count seven dots, forming what may be a dolphin with a ball.
I’ve been in the weirdest sectors of the hospital. Driven into what felt like a closet in the basement where they drained litres of fluid from my lung and belly. Where I nearly held my breath as I stared at shelves of various N95 masks and wondered what was going on.
Kat Dornian 